06/14/13

YMCA: Day Four & Five

I was too exhausted to get any words out yesterday, but the day was fairly uneventful. There were things, but nothing major that happened. I was rather zombiefied and needed to have some serious downtime for the rest of the day. The kids did (do) too. That is what we did yesterday; we sat around, painted, played on the iPad, and read some books.

Today was the last day for Ariel’s gymnastics camp. 

We had to be there earlier, at the end of class, to see her do her new awesome moves that she learned. I took the boys to the pool and today some great accomplishments were achieved. Joshua passed his swimming test which means he can swim all around the pool without needing me to be at least arms length away from him.

He was so excited.

He could not stop telling me how great it was that he could now have a green bracelet like Ariel and swim all over the pool. In addition, when he turns seven in almost two weeks from now he can swim in the pool without me. Without me! Me not in the pool or in the pool area! Deep breath. Yeah, he is ready for that I am not. :-)  Ariel passed her swim test a couple of weeks ago. I let her go into the pool without me for about five minutes.

The boys and I were in the splash pad area while she went into the pool area – ALONE! 

I am not quite ready for that either, it was a big deal that I let her go. I am trying, I am. I am working on giving them a more independence. I just like to get a feel for places and scope out the safety situations. In other news, Daniel decided that he no longer wanted to wear his life jacket today. WHAT? He told me that he wanted to try to float on his own. He went over to the 3-foot area and practiced swimming on his own. He did it too. He was doing an amazing job! He did not want any help from me. He also, did not want to go anywhere near the deep end. :-)

In a way, I am thankful that he has that hesitancy near water. 

He was so very proud of himself and kept saying, “Look! I am doing it, I am doing it. I am doing a great job!” With a huge smile and many giggles. I was gleaming because it is a huge accomplishment for him and because he decided it on his. He was proud of himself and felt confident. As much as I may seem like a “helicopter” mom, it fills my heart with happiness to see my kids become independent and feeling proud of themselves. After all of that swimming greatness we went to go watch Ariel.

I was a bit disappointed in that we only saw the children do one thing.

I am not sure what was going on, but it did not seem like the original plan. However, I did get to see Ariel do some great moves on the bar. It was just fabulous to see her excited, happy, and enjoying herself. She has decided that she wants to keep doing gymnastics. YAY! She got a certificate and held it proudly. On the way home, she shared ALL of the grand awesomeness that she learned and she made it clear that she is ready for level two. :-)

 I am on it! I am pretty beat today too. 

Tomorrow is going to be quite an eventful day because the property manager is going to be out here at 9 am along with about six other people taking care of the landscaping that the owners have dropped the ball on for over 9 months. It is kind of a jungle around here. They are also, taking care of water leakage issues and other major needs around the house. I guess they took the threat seriously that we were going to find another place if things did not change. We have made it clear that we will no longer communicate with the owners directly and will only respond to the property manager.

Apparently, they have accepted those terms. 

We are planning to stay as long as everything gets fixed and certain addendum’s are put into the lease. It would make things a lot easier for me if we did not move. Here is the reality of it. I would have to pack up the entire house myself, I would have to clean it, while doing that I would have to prepare for school, continue the kids activities, do school with the kids, Daniel’s therapies, my everyday tasks of taking care of the kids, and meals. I foresee another break down in my future if we have to move. Therefore, I would rather not have to thank you very much. I will not go into detail as to why I would be doing all of that, but it is what will happen if we have to move. Next!

OK! There are the positives for day four and five. 

The week went great. We are tired, cranky, overloaded, but all in all, it was worth it. The house situation looks to be solved. Thankfully! (Still apprehensive, will believe it when I see it, but hopeful.) Huge things happened this week socially and on personal levels for the kids and me. I am more at ease with next week … for the moment.

Although, I am not too keen on the fact that Joshua’s camp starts in the afternoon.

The pool will be closed for swim lessons, which means that Ariel misses out on swimming action. Not to mention I have to somehow keep her and Daniel occupied. I hope it does not rain so I can take them to the splash pad and playground. If it does rain, I am not sure what I will do. Ariel can go into the activity center, but Daniel cannot. It is too loud and chaotic in there. :-/

Oh, well it will work out. Picture time! 

 

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06/12/13

YMCA: Day Three

Hello!! Happy Wednesday! Today has been a good day. There were a few hiccups, but it ended up being one that can go in the books as close to awesome. Daniel has been in a mood today where he is being more demanding than, usual. He does not want me out of his sight and if he cannot see me, even if I am close by him, he starts to panic and yells, “Mommy, mommy!” Very loud. That happened a few times today other than that, he was a happy fella.

We are all being stretched socially and I am sure our sensory system is being stretched as well.

After the boys and I took Ariel to her class, we headed to the pool and splash pad for some fun. My cousin ended up being there and I was able to get even more information about home school stuff around here. She actually LOVES calendars and manages the calendar for the home school group. I am so excited about this because she puts everything on there that is going on around town free or not. It saves me a ton of time researching and trying to find places to go. In addition, many times the home school group will meet up at the events.

My joy is hard to contain.

I have been searching and searching for a group that would be a good fit for us and it seems as though this one is. I am not feeling my usual anxiety which can be out of control and irrational. I do have normal anxiety about meeting new people and their kids meeting my kids. However, I really enjoy my cousin and being around her kids and from what she has shared about the other families it sounds like we will fit pretty well. OH! And she told me about a Lego home school group! Oh, boy. Oh, boy. I cannot wait to get the info Joshua will be so excited. Ariel will too, but Joshua may do flips all around the house with excitement. :-)

She shared some other great information too.

It has given me some much-needed hope for this coming year and helping my kids find friends. I was in one of my talkative moods and ended up blurting out all sorts of things about my social anxiety. Sometimes I really do think my words have a mind of their own. They are always coming out before I am able to think about them. (When I am in this type of mood, other times the words won’t come at ALL!) The boys were a bit frustrated that we had to leave they wanted to stay longer. Ariel shared with me that she told some of the girls about Aspergers and ASD.

I found this odd because she had not done that before.  

She said that she explained to them that she thinks that she is Aspergers and she could not handle some of the things that they were doing. She could not recall exactly what they were doing, but it had to do with them repeating things. ?? She also said that she explained to them that Daniel is Autistic, they asked questions, and she explained it to them. I asked her what she said, but she could not remember. I let it go, but thought it was great that Ariel was already advocating for herself and Daniel. How awesome is that?

When we got home, the kids just wanted to get on the iPad or computer.

Daniel is becoming fixated on the iPad. He is getting overloaded, but refusing to stop. It has been a bit challenging because of this and the fact that I did not have it in me to take on that battle today; I decided to take them to a public pool. The YMCA pool is indoors and I thought they might enjoy going to an outdoor pool. I took them to the pool that I went to growing up. It is still the same! I have good and bad memories, but pretty much swimming and being in the sun can trump all negative memories I have. It is something that I have always enjoyed and will always enjoy.

It went really well.

We all had a great time, they loved how big it was, and being able to jump off the side of pool into the deep end. Well, Ariel and Joshua. Daniel wore his life jacket and became obsessed with the many huge jets that the pool had. He investigated them for a while. However, he did play with Ariel, Joshua, and another little girl that Ariel knew from the Y. What? Oh, yes, he did. It was so awesome to see him play with them and have a good time. When he was done, he was done and he went back to doing his thing. I just smiled the whole time.

That is all I can recall at the moment.

I am so tired and Daniel is currently telling me, “You are taking forever. How many minutes do you have left? What does hold on mean?” So I suppose I had better read to him and get him to bed. :-)  I am glad I decided to do these posts though. I do not want to lose all the good that is going on this week because of any “challenging” moments that may drain me or because I get too tired. Now to gear up for tomorrow.

Photos from the pool! 

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06/11/13

YMCA Week: Day Two

OK! Day two and everyone is already overloaded. Yikes! However, I am hopeful that once we get into our groove we will all do much better. Just for kicks to add to the stress I am considering taking the kids to a Renaissance Festival on Saturday. We’ll see how we are all feeling by then, but it is free and they have never been. I went several times in my life and loved it!

images (6)Yesterday, I forgot to mention that Joshua made some friends. 

A couple of boys his age gravitated toward him and they played the whole time. Out of the three kids, Joshua is the most out-going and social. He does very well at making friends as long as they play something that he likes. Today one of the same boys was there. He also, tried to interact with Daniel yesterday. He asked Daniel questions several times AND Daniel responded. Daniel even showed him what door to knock on to ask the lifeguards for goggles. HUGE! Daniel’s usual response is to look at the kid, smile, laugh, and then, walk away.

I was very surprised and happy for Daniel. 

He seemed to feel good about it. Today the little boy came up to Joshua and Daniel and asked them to play. Joshua went off swimming with him right away, Daniel stayed next to me, as though he was not a part of the invite. I asked Daniel if he wanted to play too and if he did to go over to them. He smiled and went over to them. He tried, but was not sure what to do so he went off on his own again. He was ok with it. He does enjoy his alone time swimming. I on the other hand was elated for him. He has never done that and I could tell that he is starting to feel more comfortable being around boys his age.

Still he prefers to be around younger children, and BABIES trump everyone! :-)

Ariel is so excited too and she is happy to be in a class full of girls. Last night, she was requesting a sister again. Nope. Not. Nary. Never going to happen. ‘Nough said. It is good to see her enjoy herself and be happy with other girls. It made my heart leap with a bit of jollity when I dropped her off this morning and a couple of little girls yelled, “Ariel! Hi!” while running over to her. Her weekend gymnastics has been like that a little bit, but this class is great because it is a diverse group of about twenty. The atmosphere is positive as well so all around it is a great experience for her. (And me)

Well that is about it for today. 

It went good; I do have a little beef with the older male lifeguard who is going to get a serious attitude from me if he doesn’t stop with his anal whistle blowing ways. BUT I am focusing on the positives this week and will let it go. However, be forewarned if he does not stop his shenanigans I will have a post about me getting kicked out of the YMCA for tossing him right off his lifeguard chair. Not really. I like to fantasize about my uncontrollable self taking charge and tackling those who abuse their authority. ;-) Kind of like the scene in High Fidelity. (Warning strong language and fabricated violence.) That is all.

Now I ask you to join me in a good evening dance YMCA. Wear a costume if you feel like it! 

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06/10/13

YMCA Week Begins: Day One

Today started the next two weeks of adventures at the Y. Ariel has gymnastics camp every morning this week and Joshua will trade off next week starting his basketball camp. We have never done anything like this before. There are many reasons for that, but I am excited that we finally get the opportunity. It is great to give the kids a chance to try things that they are interested in. I cannot wait for Daniel’s music therapy/social group to start. (June 21st) I think this is going to be amazing for him. I am also excited to have found a possible piano teacher for him whose cost per lesson is something that we can afford. I am calling her tomorrow. (Can’t wait!)

This experience will be a challenge and huge progress for us.

I thought about all of the new social situations that we will all be doing and about the social/sensory/life stress in general that is happening in the next two weeks. It made me think that I REALLY need to make this as positive as possible and that I need to try to reduce our anxiety levels as much as possible. My mind has been soaring for days. Yesterday, I could not think straight at all – I was a hyper-spaz. I truly was there is no way around it. I was jittery, my mind was racing, I could not get a calm moment, I started to lose my words, I started to panic about my family, then freaking out about past events that I do not even care about. I almost went into a complete shutdown, but was able to pull out after a couple of hours. Basically I was spinning in looping circles of nothing and everything.

I could not make it stop. 

I knew that I had to do something so I came up with ideas on how to give myself direction for the next two weeks. What helps me? Writing. Ok, write posts about your week. I need a purpose because my routine is ALL out of whack. I need a purpose and a new routine for these weeks because the kids need me to be calm and focused. They too need as much routine as possible. Because I gave myself a goal of writing about all of this, it helped calm my mind. This made it possible for me to come up with a routine that I could layout for the kids.

Yay! We all feel a little better.

Another thing that I need to do is write out what is causing me to feel so much anxiety. My anxiety is not all because of our routine change or having more social interactions than, usual. It stems from what is happening in with our living situation. Currently, the homeowners of this house have been doing triangular communication. They have sent  me texts in the evenings, committing to things that they are responsible for in the lease, and not following through.

For several, months we have had problems with the plumbing throughout this house. 

Now the owner is not taking care of some major leaks. We finally got the property manager out here and he is in agreement with us that we should not be dealing with these situations. As per the lease, the owners have not kept their part of the deal. We have also had our lives continually disrupted with people coming and going. I have not been given much notice, on some days they have texted me 10 minutes before telling me that someone was to arrive at our home. We have explained about Daniel, Autism, and how this is not something that can happen. People just do not get it.

I have been concerned with some of the people they have sent out to work on the home. 

One day I was told that the landscaper was going to come at noon. I took the kids to the park in hopes of them being gone by the time we came home. However, when I arrived home several hours later there was a man sitting in our yard. My husband was home so I was very confused and a bit concerned. (I thought I could take him, besides the ax was right there when I opened the garage so if he came anywhere near my kids he would have lost an ear or something. I am not violent, but if anyone tries to mess with my kids they are going down! :-) )

The man could not speak English, but I managed to understand that he was sent their by the owners. 

A landscaper with no equipment or lawn anything? He did not work on the lawn, he cleaned the gutters. A few days later the owners texted me and said that they were sending “the landscaper” and “Do you have any garden tools that he can use?” Um, no. Even if we did, there is not a chance that I would let him use them. What if he got hurt? Good grief! So that is just a little taste of what has been happening. So now, I have been looking for new houses to rent. It is very limited. We have specific needs and currently the only home that would work is not available until September 1st.

That sets off a whole other round of anxieties. 

School starts up again August 12th and my husband is supposed to be working out of town the last two weeks of August. Daniel and Ariel are starting third grade, which will be a new transition, and it takes a while for Daniel to get comfortable with new homes. It normally, leads to weeks of meltdowns and all sorts of overloadedness. Granted he did much better this last move and he will mostly likely do even better with another move because he will be in therapy and we can work on the move transition for about two week before we do it. Still, it is a lot. Frankly, I would just like to live in a house that is not constantly having problems. It leaves me in a perpetual state of anxiety.

In the back of mind, all sorts scenarios and questions swarm. 

What is going to break next? What of ours is going to be ruined? Who is going to randomly show up? Am I going to get a text tonight at 10 pm? So on and so forth. (I like saying that, I do not know why. Lol!) I have no SAFE place!  My goodness, I have been saying that for a long time. I am beginning to feel like the Y is my only safe place. It had better not turn on me! All right, those are some of the reasons for my overly anxious self. The good news is that today went great.

The boys and I had fun swimming all morning.

My cousin showed up too and I was able to talk to her more about the home school group. Come to find out she is good friends with the woman I have been trying to connect with since before we moved here. She is the woman who leads a support group for families affected with Autism. Affected? Is that the right word? I do not know anymore, I am sorry folks I cannot stay politically correct all the time it is just too much for me. I ask that you please do not get offended, but I cannot do anything about if you do so let’s just move along – shall we? ;-)

It was good to get a feel of how Autism is perceived.

I shared with her some of my negative encounters and why I am so “on guard” when speaking to people about Autism. She understood how I could be like after hearing some of the things spoken to me. I became worried when I heard the words “heal Autism.” That is a trigger because of what I have experienced and it makes me very sad. Although, I understand why people feel this way, and I also understand that many people accept their child as Autistic. They love them for ALL of who they are, but they would like the challenges, pain, and any perceived or actual suffering to go away.

I get that, I think many times the words get jumbled and communication gets distorted. 

I ended up telling her that I was diagnosed Aspergers because I was telling her how it was not an environmental or some other issue when it came to us. Not that those could not have played a role, but it is seems pretty clear that my genes and my husband’s genes carry some heavy traits. She did not seem surprised and shared a positive story about a teenage Aspergers boy that she knows. It was really good talking to her and ironically, I feel very comfortable with her. Ironic because I normally feel very awkward and out of place when I am with my family. She is very open and has a peaceful feel about her so I enjoy talking to her.

However, I started to panic when I got home. 

I have not even told my dad that I am diagnosed Aspergers! My mind started to race and anxiety filled my body. All sorts of things flooded my brain. Did I say too much? What does she think of me? Did I sound negative? Did I say anything that off the wall?  I cannot remember all of the nonsense that filled my brain. I stopped, told myself to sit down and write this post. There is no reason for me to think any of those thoughts, even if they were true, it is ok. She would not cut me off or ignore me simply because I spilled too much information or if we did not agree. That is the whole point of her home school group.

She shared that the people are very accepting. 

I was so happy to hear that there are Christians, Pagans, and Atheists among  her homeschooling group community. It makes me feel so much better about participating in their activities. After these two weeks, we are definitely going to go to their meet ups. I am still not done with the Y today. I have my spin class tonight and I am looking forward to it.

Ariel and Joshua are staying home so I will be heading out alone.

Woot! A car ride there and back all to myself – a total of 14 minutes alone! I am doing a happy dance. :-) I do not think the rest of my posts will be as long as this one. My hope is to share all the positives and take pictures to help remind me of all the fantastic-awesomeness that may get lost in my chaotic mind!

Some pictures from our fun last Saturday! Splash pads rule! (Except when they are freezing cold or splash me in the face then, they are torture devices that are trying to kill me. Just sayin’.) 

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06/5/13

That Did NOT Go As Planned …

I have concluded that something, for some reason, is trying to teach me a lesson in things not going my way. Granted I have managed to progress in this area fairly well, most days. After having children you really, do not have a choice other than learned to accept this fact of nature. HOWEVER, things have not been going as planned for over a week if not longer – I can no longer remember because my allergies have messed up any sense of time that I had which was already very little to begin with.

There has been problem after problem with the house that we are renting.

This has caused people to be in and out of our home and property for days. This is never good. It makes me incredibly anxious and left with feeling constantly “invaded.” I have to put in extra effort to work through my anxieties because the children, especially Daniel feed off my emotions. I have not been “perfect mom” throughout all of this. I am also feeling frustrated because I have not completed several things I set out to before Ariel starts her gymnastics camp next week. The week after Joshua starts his basketball camp and that will be two weeks of us being at the Y for three hours every day. Not to mention my two workout nights. A lot of people time …

We will all need to recover from that.

I have so many posts that I have been trying to write that I just cannot complete. I want to finish them so I will stop looping about them. My mind is not cooperating and I find it very frustrating. However, today I was hopeful with the plans that I had made. Last Saturday, while swimming at the Y with the kids, I noticed a woman who looked familiar. My brain was scanning her features kind of like the Terminator does, well actually that is quite an accurate way to describe how I process information around me, especially faces. Here take a look Terminator view.

Anyway, I was scanning her features and then, her children.

Her little boy started talking to Daniel, but he just smiled and giggled because he does not know how to have a conversation with other kids yet. Joshua swam over and started talking and playing with the boy. Soon Ariel ventured over as well. I thought to myself that possibly this was a relative of mine because I vaguely remembered pictures of the children. I have such a hard time remembering faces, more like remembering whom the faces belong to. I can remember features, but have no recollection of who they are or why I know them. Once she turned around, I knew her tattoo. I saw that and her facial features started to rekindle my memory. I had a feeling that we were cousins, but I was unsure.

Without thinking about it, I went up to her and asked, “Are we related?”

She said, ”I am not sure, what is your name?” I told her my name and sure enough, we are second cousins. She was unaware that I moved back so she was not sure it was me either. We only saw each other throughout the years at the big family reunion we would have during the summers, but it had been over 10 years since the last one and we barely spoke.  As we talked, I discovered that she belonged to a home school group that I connected with, but have not been able to attend any of the social gatherings. This is partly due to my social anxiety, but mostly due to school schedule and the kids not being up for socializing. I normally, do pretty well overcoming my social anxieties for my kids, but when my world feels too chaotic for me I struggle.

I told her that I would friend her when we left and I did. :-)

She added me to their group and this week they had planned to meet at a park that is across a bridge in the next state. It is not that far and I used to be familiar with the town. I decided that I would take the kids. It was today. Everything was going well, I printed out my map and maps for the kids. I packed everyone’s lunches and snacks, and had plenty of water. I worked through some of my social anxiety about meeting new people and my nervousness about how people would respond to Autism. (After I posted about it on my facebook page and my lovely friends helped ease my anxieties!)  We were running a little late, but not too bad. I had prepared the kids by letting them know that we were going to a new place.

I gave them the time frame of how long it would take.

Funny side note here, Daniel saw the map and said, “Oh, my gosh! The park is in another state!” I looked at him and asked, “How do you know that?” He said, “I know because we are going to cross the river.”  I had no idea that he knew that, but I really should not be surprised he has been studying maps lately and this week he started drawing maps of the routes he takes in the house. They are complete with “A” marking the starting point and “B” marking the destination. If anyone comes over, he will be happy to give you a map to help guide you from the kitchen to the bathroom down the hall. Ha ha ha

OK! We left.

I followed the directions, I did everything right, but somehow I missed the exit. I was right there AND somehow I missed the exit ##B! I still have no idea how it happened. The state that we were in has land and land for miles. I decided that I needed to get off on an exit and turn around. Not as easy as it sounds, the exit I got off on spun me into a circle that had me going in another direction. The next exit was seven miles away. I thought surely it would let me turn around and get me back to where I needed to be.

I go off on the exit and it looked like nothing, but land and farms.

Thankfully, I finally got to a place where I could turn back onto the interstate in the correct direction. I will add another component. Daniel was freaking out! I tried to use my Google maps on my phone and it would not work. I tried using the app and the internet I could not get it to work. Daniel was yelling and telling me to use the phone. I tried to explain to him repeatedly that it was not working and he could not comprehend it. Prior to this, he was as happy as could be. I was elated because he actually got into the car knowing that it would take 22 minutes to get there. He has refused to go anywhere farther than, 15 minutes due to his car anxiety. He still will not eat or drink in the car because he is afraid that he will puke.

I called David like 20 times and he was not answering the phone.

I lost my cool after Daniel yelled at me again and caused Joshua to lose it. I finally made it to the town that I was supposed to be in and went to a gas station to try to get some sort of direction thing to work, or get a hold of David. It did not work – David finally answered the phone. To make this shorter, I was right down the street from the park. It was on the river. We got there, got out and I looked for my cousin. I did not see her. I had also, not noticed that in the post she mentioned that there was a splash park. :-/ I took the kids walking by the river because I did not see a park. Eventually, we found it not far at all. They played for a while and then, I let them play in the splash park in their clothes. We ended up having a grand time, though it got a little icky when the train passed by and blasted its horn. Daniel ended up becoming frightened and then, wanted to know why it had to use a horn.

On the way home, I was a frazzled and needed a break. 

I became frustrated because of the whole situation trying to get there; getting lost makes me so upset. I recovered, we all recovered, had a great time and then the blasted train had to go and cause problems! I wanted to leave on a good note. The ride home was good though. We got home I gave them showers fed them snacks and we are all happy and jolly. Today DID NOT go as planned, but overall I am happy. The kids are happy. We have a great new place to go hang out now during the summer. And I found a bridge that I am slightly obsessed with. I love walking by the river that always makes me feel peace and fills me with positive childhood memories. I am going to try to take the kids to another social gathering with the home school group.

I am glad I did not become too anxious and decide never to try again, at least for the moment. ;-)  

Photos from today!

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06/1/13

Gifted? What Is That All About?

I am so excited to have a REAL library here. Where we used to the live my home library carried more books and resources. It was very limited and small. Here there is a grand awesome library downtown and I think about eight more all across town. They are smaller, but they carry recent books and they are connected to the main library. I mention that because well, I was excited and because it has a TON of resources for Autism, gifted learning, and learning disabilities. I have been researching ways to help Daniel and Joshua with their reading struggles. I have been concerned about Joshua because he shows more prominent signs of dyslexia. As a matter-of-fact, he shows not just a few signs and symptoms, but he ranks extremely high according to the questionnaires, signs, and symptoms I have read.

I already knew this, but I started to doubt myself.

I explained this to his teacher at the beginning of the year. She seemed to feel that with repetition and with the five-day reading plan, that he would be able to grasp reading. He did not. He has struggled throughout the whole year. He also, freezes when he has to do timed reading assessments so I do not feel there was ever an accurate reading assessment done with him. (I am trying to help him and Daniel with this by practicing timed reading each week.) She wanted to retain him. I refused. I could not do it. The boy knows his subjects. He has mastered first grade math, science, social studies, etc … He struggles with handwriting and reading.

He is gifted in math.

There was no way I could live with myself keeping him held back based on these reading assessments and his ability to read sight words. He has progressed and in the last week, he has done extremely well. I have been researching and applying strategies from dyslexic sites I have been on. The library has an audio series that I plan on getting that goes through specific techniques that I think may help us. The more I read about dyslexia the more I thought about the word “gifted.” Ariel has already been placed in gifted classes. She is reading at 4th to 5th grade level with minimal work on my part.

GiftedIt comes naturally to her.

It does not for the boys; however, math comes naturally to the boys and not for her. She has to work a little bit harder and it has to be explained in certain ways. I decided that I needed to trust my instincts when it comes to my kids. All of them struggle with handwriting, I have dysgraphia and I have other traits of dyslexia. (Types of dyslexia.)

They all show signs and symptoms too.

Something is seriously wrong when Daniel has a meltdown after every writing assignment and it takes him over an hour to write six sentences. Something is wrong when both Joshua and Ariel are in tears, reaching the point of sobbing after they get to the end of their writing assignments. They all need many breaks in the middle of it and that still does not help.

Have they improved?

Yes, they have, but at what cost? Thankfully, Daniel’s OT is suggesting that in his IEP next year for larger writing assignments he be allowed to use the keyboard instead. We will still work on handwriting. I am happy to know that the process has started for Joshua to get accommodations as well, the Special Ed teacher is awaiting approval. I hope that by the beginning of the year we can get some things for him. However, Ariel is not. Since she shows improvement and is in gifted classes, she does not get these accommodations. I have shared about her struggles, yet, it is another feeling that she will just acclimate and be able to adjust.

Currently, I will have to make do with helping her because she just-does-not-have-enough-visible-issues.

Urg! I will have to process that and see how she does this year. If it is too stressful and overwhelming, I will see what can be done. All of this made me think that I really need to find resources about being gifted. When I thought of gifted I had automatically thought things like, special, highly intelligent, in the advanced classes, not having struggles, not needing help, able to learn ALL subjects with ease, not me. That is not true, according to the criteria, I am gifted, and I did several questionnaires that give the indication that all three of my children are as well. My perception of gifted was skewed and this is confirmed through several resources I have read as well. How does society get things so contorted?

So what does gifted mean?

There are several views about this, BIG SURPRISE! It can vary. Here is the wiki quickie:

Intellectual giftedness is an intellectual ability significantly higher than average. It is different from a skill, in that skills are learned or acquired behaviors. Like a talent, intellectual giftedness is usually believed to be an innate, personal aptitude for intellectual activities that cannot be acquired through personal effort. Various ideas about the definition, development, and best ways of identifying intellectual giftedness have been put forward.

Intellectual giftedness may be general or specific. For example, an intellectually gifted person may have a striking talent for mathematics, but not have equally strong language skills. When combined with an adequately challenging curriculum and thediligence necessary to acquire and execute many learned skills, intellectual giftedness often produces academic success.[citation needed] There is also artistic or creative giftedness, which may or may not be combined with intellectual giftedness.[citation needed]“ 

I will only use that definition – I think it is straightforward and clear enough. 

When it comes to schools defining, it is done through each state. Each gifted program may differ and they may be called by different names. Apparently, some feel using the word “gifted” is a negative thing for a child. I have been researching off and on about giftedness because I noticed some things that concerned me about Ariel. She has made it clear that she is “aware” that she is different, but she is not really sure how. She knows that she is very smart and finds school to be boring and unchallenging at times. She is uncomfortable around her peers and no matter what I do to try to help her with this, she cannot seem to feel as though she can “fit in.”

She show signs that she is an introvert.

However, she is also not really upset by this for the most part. There are some days when she gets down, but many times she is just happy. I have reassured her that all of these things are ok, but emotionally she internalizes, can shutdown, and will isolate herself. There are times when she needs that solitude and other times when it is because she is feeling down. I have no problems with how she processes, many times when I observe her she is like a “mini-me” which is exactly why I wanted to make sure I did my part in helping her. I am not being overly sensitive she and Joshua both need more support in their social and emotional needs. I know this and that is why I have them participating in different activities this summer with kids on their own.  

In two weeks, Ariel will start gymnastics camp. 

It is a weeklong and for half the day. This is a big step for both of us. She has never done anything like this and we are both excited. She will get to do something “without the boys!” The next week Joshua will go to basketball camp. I think this will be great for him. He needs to have his own time away from Ariel and Daniel too. Daniel is starting his music therapy social group the third week of June which will be the first time I will leave him doing activity. He and I both need do that. I have other things planned for the summer and I am already preparing for the fall.

I intend on getting them into things that come naturally for them. 

I have been concerned with their emotional needs very much since; a lot of my energy has been focused on Daniel. I know that I have dropped the ball and now I am at a place where I can focus more on their needs. Being that all three children are in the gifted range, I can apply what I learn to all three of them. I will have to tweak each thing to work for them as individuals, but for my first plan of operation, I can work with all three of them. A couple of weeks ago I found this book Managing The Social and Emotional Needs of the Gifted. I have gained a lot from reading this book. (A lucky find at the teachers store on the clearance rack! $5.00!)

It gave me words for what I felt, but did not know how to say or approach. 

All that I am learning is helping me understand myself much more too. I have written about my findings regarding people who are gifted here  Short on Words — Me? It has some great resources, but after I wrote it, I did not venture off into it anymore. Now that I recognize many patterns in my children, I have a new interest in learning how to teach them. Because frankly, this last school year proved to me that they do not excel in their learning by preparing for state testing’s. I do not believe any child does, but that is my own issue. I plan on learning as much as I can to be able to use the curriculum and virtual school that we go through in ways that will help their learning be more positive.

I am not sure how I am going to do this yet. 

I have only just started reading, so my mind is collecting data, connecting information, and pondering how each child processes, their gifts, and challenges. I am pulling together these thoughts and ideas to see how the information applies to them, and thinking of ways to prepare for the new school year. I have until August 12th! My first and most important priority is to help my kids understand themselves. They all three expect to be perfect at something the first time they try it. If they are not or they find it to be a challenge, they become upset. Many times, they speak negatively about themselves. I am sure that sometimes they are trying to get an emotional response out of me, but it is still not something I want them to make into a pattern of thinking.

I will use handwriting, it is one where all three of them say, “I am not good at this!”

Or “I will never be able to write.” “I do not know why I am so bad at this.” Then, there are tears, frustration, meltdowns, or shutdowns. There is nothing wrong with them. They are doing amazing work; I see how much effort they put into each writing assignment and how much it costs them emotionally and physically. They become exhausted, drained, and their hands hurt. I have the weighted pencils AND every type of writing instrument there is out there. We have done the OT exercises and the sensory diet. We have done the work.

I understand their frustration after trying so hard and still struggling.

What I find even more frustrating is that this “inability” is what the focus is on, or for the boys their reading challenges are the constant focal point. They are being continually reminded of what they cannot do instead of bringing balance of all the things that they do excel in. This is emotionally taxing on all of us. Joshua has another component where he does not understand why reading is so easy for Ariel and not for him. I am not sure if Daniel is aware of this. He does not seem to notice what Ariel is doing with school, but you never know. He observes so many things and details that he may be internalizing his thought about that.

In my efforts to help, I picked up this book The Gifted Kids’ Survival Guide at the library.

I also got Mind Workout for Gifted Kids to help me by reading the parents’ guidebook and to see if the puzzle book is beneficial to the kids. It is all up in the air right now. I have confessed before my failures in remembering Ariel and Joshua’s challenges and struggles. I can be consumed with helping Daniel or trying to keep the peace (with everyone!) in the house. In this next week, I am going through The Gifted Kids’ Survival Guide with each child and reading it with them.

This is taken from the description:

“Based on 1,000 new surveys with gifted kids, this book will continue to help countless bright, talented children know they’re not ‘weird’ or alone in the world. It answers their questions about what gifted is (and isn’t), how to cope with teasing, how to deal with high expectations and perfectionism, how to make friends, and much more. It’s upbeat, informative, friendly, and compact. At a time when some gifted programs are being challenged, scaled back, or dropped, it’s more important than ever to have “The Gifted Kids’ Survival Guide”.”

I plan on discussing it with them and asking questions to help me know how to teach them better. 

I want to know what they are feeling, if this book can give them words to what they have not been able to express before then, I feel that is a major achievement. I am spending this summer learning more about how to understand my children’s giftedness and about dyslexia. I will not second-guess myself again. I tried to teach in the way that I thought I was supposed to and granted my kids got straight A’s, they did not enjoy getting those grades. They just wanted to get it done. It makes me wonder what they will do if they actually have more fun while learning.

I will share several resources about dyslexia and some more that I found about gifted kids. 

(I know, it’s a lot …  I didn’t even share everything! :-) I have been reading about this stuff off and on for a while. I am just now able to process and put everything together.)

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05/30/13

Triggers, Mishmash & Whatnot II

Continued from my last post

Several things have helped me with my triggers not necessarily in order, I wrote them as they came.

1) Discovering that I am Autistic, have Sensory Processing Disorder, and Synesthesia. (How my brain works and how environments affects me, a life-long journey. :-) )

2) Learning about trauma, abuse, bullying, and how it affects people, and can affect Autistics differently.

3) Discovering what triggers are and why I had them.

4) Learning to recognize my triggers and the art of redirection. (I am still learning this and believe it will be a life-long learning process. I have discovered some of my biggest ones that have the potential to send me into deep spirals of anxiety and confusion.)

5) Learning how to discern my emotions from others and embracing my emotions without judgment. (Still learning, it’s all about the process.)

6) Being mindful of my thoughts and actions.

7) Discovering that sensory issues can and are traumatic to me and that I cannot simply acclimate or “overcome” my sensory sensitivities.

8) Accepting these things about myself and utilizing the tools and resources I have found to help me.

Such as listening to music with my headphones on in a store while I shop, so I do not become overwhelmed by all the other sounds. 

I also try to keep my focus on my list so I do not become overwhelmed with all of the visual input that can make me cry on some days. I try to plan ahead as much as possible before going to the store. Then, there are my other distractions like taking pictures of things I find amusing. These types of things help me. See even going to Wal-Mart can trigger certain traumatic events in my life. If I hear a song, it can remind me of a person that can rapidly connect all sorts of events throughout my life. It can cause me to relive that moment in the store feeling the full effect of sensory, social, emotional, and physical sensation.

This does happen to me while reading things as well. 

I have been able to decrease this and not be filled with anxiety and confusion. I have seen progress in this comparing my reactions even a few months ago to similar situations I have encountered lately. This has progressed because I no longer stay quiet about my anxieties or cognitive distortions. I remind myself of cognitive distortions when I feel my thoughts start to feel anxious and I make a mental note or write down which ones I am doing. I then, counter it with realistic possibilities. I am aware of when my mind wanders into these negative patterns. Since, I have become more aware of negative thinking, causes, and effects of these thinking patterns it has helped me pull out of the spiral sooner.

I do my part to work on stopping them before they spiral.

I still struggle, have challenges and do spiral at times. We are talking about rewiring an entire 40 years of mixed up, confused, anxiety-ridden thinking. I do not voice my negative self-talk. I have been sensitive to not saying things out loud (They were still internalized, and I know that has some sort of affect on me and those around me.) because of how my mom’s negative self-talk affected me growing up. However, it seems hardwired in my kid’s brains. Ariel is the only one who does not voice it, but there have been times when she expressed her “need” for perfection. She gets so frustrated when she does not get something right away. Daniel and Joshua have expressed clearly at times by saying things such as, “I am not good at anything.” “There is something wrong with me.” “I cannot do anything.”

These words rip at my heart.

I do not understand why they automatically think such things. Sometimes I ask and they really have no answers other than, it is how they feel. I try to reassure them and reiterate that emotions are fleeting. I wish I would have known this as a child. I had no one to tell me that what I was feeling was not TRUTH. The negative self-talk and image became my truth because I did not understand anything about emotions. I did not understand that I could feel the emotions, but I did not need to accept them as my identity. However, it is a bit difficult to explain emotions to someone who does not know what they are feeling.

mind funA contorted mesh of connections is hard to explain.

My Aspie mom who did not understand emotions either raised me. We had happy, sad, anger, and depressed. Everything mixed into that was simplified into “You did not clean your room = I am mad.”

“You did listen to me = I am happy,” type of communication.

I learned how to make her happy so she would not be angry because I did not want to feel sad. Gaining knowledge and perspective on emotions has given me the ability to heal. I have been processing and working through so many years of emotional and social confusion (they go together) since October really.

It was then, that I started to see things with more clarity and realized just how much I needed to heal. 

Before I used all of my research as a distraction from my pain. It was still very beneficial because it slowly chipped away layer upon layer of distractions, distortions, fears, anxieties, and familiarity. I have not arrived that is for sure, but I have come a long way. It makes me more aware of my children’s environment and it has given me the ability to help them a bit more in learning about emotions, expression, and self-image. I believe this will help them in the future with relationships. I want them to have it better – I think most parents do. I read this other day and it helped me a great deal The Cracked Vessel. I am no stranger to pathological relationships of all sorts. This article reminded me that my PTSD is not going to disappear miraculously.

Everything connects, Autism, sensory, anxiety, depression, PTSD. 

They can work together in positive ways to bring healing/understanding or they can work together in negative ways to cause me to spiral. We know that Autism, sensory processing disorder, and synesthesia were part of my DNA working its miracles in my mother’s womb. What we did not know was how traumatic, assaulting, and damaging this world could feel. (Not only to me, but I can only speak for myself.) Who knew that this world would be chaotic, attacking, confusing, and overwhelming to me because of the way my brain processes.

We have just skimmed the surface of what the brain does or what it is capable of doing.

Yay! Neurology I love you! Can’t wait to see what else you discover. ;-) I wrote this post in hopes of helping others see that the world they may find full of pleasantries and loads of fun can be painful, scary, and confusing to others. It is not all negative, however, the majority of my life it seemed that way. I am working my way into this world on my terms and in healthy ways for the way my brain works.

Things that may seem very minuscule to some could be traumatic to others.

This goes for everyone, something that I feel is not a big deal could be devastating to another and vice versa. The thought of a sudden loud fire alarm still causes me to feel panicky, sick to my stomach, and makes my ears hurt. I see red blinking lights and my hands over my ears yelling, “Oh, my gosh! Why do they do this?” While my teacher tells me to be quite and just do what I am told. Agg! Flashback! I hope these two posts give some clarity to how the sensory, social, and emotional world can affect someone on the spectrum. I will list C-PTSD symptoms below because I do not feel enough people know about it.

I will also link to PTSD symptoms along with several more resources, like always. :-)

I know that I have written about some of this before, but once again I have a better understanding about myself. I believe there are many people out there who do not realize that they are suffering from C-PTSD and/or PTSD. When I understood what it was and that I was suffering it opened up a door to healing. I had answers for why I was reacting in certain ways. I finally, understood that I could do something about it. I understood these things for my children, but I had not connected it for myself. I hope this post brings a little more awareness and some practical ideas that others can use. If anything I have resources that can be beneficial!

What additional symptoms are seen in Complex PTSD?

An individual who experienced a prolonged period (months to years) of chronic victimization and total control by another may also experience the following difficulties:

  • Emotional Regulation. May include persistent sadness, suicidal thoughts, explosive anger, or inhibited anger.
  • Consciousness. Includes forgetting traumatic events, reliving traumatic events, or having episodes in which one feels detached from one’s mental processes or body (dissociation).
  • Self-Perception. May include helplessness, shame, guilt, stigma, and a sense of being completely different from other human beings.
  • Distorted Perceptions of the Perpetrator. Examples include attributing total power to the perpetrator, becoming preoccupied with the relationship to the perpetrator, or preoccupied with revenge.
  • Relations with Others. Examples include isolation, distrust, or a repeated search for a rescuer.
  • One’s System of Meanings. May include a loss of sustaining faith or a sense of hopelessness and despair.

Resource list. (Reminder, I may not always agree with the resources I share, but I leave it up to you to determine what information helps you. I find good stuff in all sorts of info even if I do not agree with it.)

Unraveling Emotional Triggers

Post-traumatic stress disorder in people with learning disability

A Developmental Approach to Understanding Complex PTSD

An interesting discussion on WrongPlanet.net  Complex PTSD and Autism

I do not want to leave out the pressure and challenges that parents can be under as well. I will share this link about a mother who stated that she felt trauma from situations with her ASD child. I ask people to open-minded about this. There is no attack toward the child. The parents are not trying to make their child(ren) look horrible, they are simply sharing their experience. As with everything, stress, love, empathy, anxiety, trauma, we all differ in how we are affected. We all differ in how we process and respond. I can relate, but mine is enhanced by other factors as well. I have to work very hard at keeping my balance on a daily basis. Some days I do not do so well, other days it more joy than I can articulate. That is life. :-)  Here is the link. ASD and PTSD

Everyone has their own triggers they can be from food to health issues. I will share some other things that I read in regards to different triggers.

I might have shared this before I cannot remember I consume so much information! ;-)  Uncover and Manipulate Your Triggers to Optimize Your Work and Life

Triggers: What Are They? How Do I Deal With Them? 

These next two are geared toward employment, but I decided to share the information anyway.

How To Hack Your Brain – Part I: Trumping Cultural Triggers

Stop Reacting! Start Responding: How to Hack Your Brain Part 2

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05/29/13

Triggers, Mishmash & Whatnot I

There has been a “new” joke that has paraded around the internet with folks. They have been placing “trigger warning” before any and everything. At first, I was confused by this because trigger warnings are a serious matter to me. I have been abused, and I am diagnosed with PTSD. I have some serious triggers that can affect me and cause me to spiral into PTSD symptoms. Since, I am not normally in the “social know” I had no idea why people were doing this.

I am still unsure, I can infer based upon observations, but I may be inaccurate. :-)

At first, every time I saw the words I took it as a serious warning.  It caused me not to read several blogs because of this confusion. However, I get that it is some sort of joke now after several months. I am not offended or anything, but I would like to address some of the importance behind the words “trigger warning” for people such as myself.

I need the warnings at times.

If I read or see any sort of violence, abuse, trauma, type of posts or images I can be affected in a way that causes me to shutdown or relive my own experiences. Interesting side note: There are certain times when I can watch shows like Law & Order SUV and not have issues, but if I see the actual act of violence even if I know it is not real it can cause a physical reaction and PTSD symptoms.

There are other times when I cannot even look at a violent cartoon.

I have not figured out the why’s of that yet. I have to avoid news and graphic images that show horrible incidents. There are even times when I see a picture of a smiling person who has died that causes me to sink into depression, especially, if it was a horrific scenario. I understand people wanting to share the happy pictures of their loved ones and remember them, but it does cause an emotional response in me. Death I understand, how others respond to death is what I do not understand. I have past experiences of social confusion and hurt when it comes to situations regarding death. It can take me days to recover. My mind, body, and spirit become consumed with images of the person, how they were harmed or passed away, their family and friends who are suffering and many other thoughts form.

If I do not redirect myself, I will start connecting events that are similar from my lifetime.

It can manifest a path of hopeless thoughts and remind me of all the times that I “failed” socially or when people “failed” me with being empathetic toward my requests. My cynical side can wander in and try to convince me that there is nothing good in the world and I can do nothing about it. I used to be unaware of this; I assumed I had no control over these thoughts. I have learned that indeed, I do have intrusive thoughts that seem to come from nowhere, but the discovery of triggers has helped me understand that this is not the case. Many, many things stir my thoughts.

So what are triggers? 

“A trigger is something that sets off a memory tape or flashback transporting the person back to the event of her/his original trauma .

Triggers are very personal; different things trigger different people. The survivor may begin to avoid situations and stimuli that she/he thinks triggered the flashback. She/he will react to this flashback, trigger with an emotional intensity similar to that at the time of the trauma. A person’s triggers are activated through one or more of the five senses: sight, sound, touch, smell, and taste.” ~ What is a Trigger?

I am sure that most people are aware of triggers.

However, I wonder how many people on a conscious level know their triggers and know how they affect their daily life. Not many people consider the triggers of children. I am hypersensitive to my children’s triggers. I try to stay aware as much as possible because their triggers can set off a chain of events. Our whole household can turn into a cluster of trigger set-offs! Of course, I am not always on top of it that is not possible. I will use Ariel as an example. A few years ago, she hurt her foot badly from jumping on the bed and falling off. She could not walk on it for about 6 weeks. (Short version) Now anytime she hurts that foot she begins to shake, she starts crying, and will repeat, “Oh, no! Not again, please, please not again.”

It is pretty much word for word every time.

She is accident prone on her feet for some reason. It does not matter if she accidentally stubs her toe or slightly twists her ankle while running, she will respond with wailing, shaking, and the fear that her foot is badly hurt again. I know that my children have triggers from sensory sensitivity as well it causes them to respond in ways that may seem like “overreacting” to people.

Joshua has covered his ears and screamed at the top of his lungs because something was too loud in a store.

Daniel has had a complete meltdown in a Wal-Mart because the lights were flickering and hurting his head. For me, I had no idea that my sensory system felt attacked on an hourly basis in certain environments. I had no idea that the reason why I would lock myself away in my apartment, reading, listening to music, and consuming my special interests that I was creating a healing environment for myself. I did not realize that my stims were bringing me balance and comfort. I did not even know what a stim was until learning about Autism.

emotions012I have many sensory triggers. 

If you have not read this, I highly recommend it PTSD and Autism from the Autism Discussion Page. It is one my favorite resources on facebook.

Sometimes my triggers can be good.

For instance, moving back to my home town I have had several times when the smell of the grass or certain flowers have consumed me and transported me to childhood happiness. There have been moments when I looked at the moon and I could feel the color of purple and indigo making me remember times when I felt safe. My negative triggers have been more consuming for most of my life since it feels like I have many more than positive ones.

Although, that is slowly changing.

I have many social triggers, food triggers, abuse triggers, being manipulated triggers, being rejected, abandoned, isolated, as well as feel good triggers. All of them can have positive and negative effects on me. Linking to two reads here. Never Waste a Good Trigger: Part One and Never Waste a Good Trigger: Part Two. In the past, I allowed my loops to take over my brain – it became an addiction. Whenever I was triggered by something negative, I would let the emotions consume me. It caused me spiral into negative self-talk. I was so familiar with negative feelings that I would actually feel some sort of pleasure from feeding my anxieties and fears.

When I would be triggered, I would go and feed into my trigger creating even more. 

There is something to consider here though, and that is I had NO IDEA that I was triggered by other people’s emotions. Whatever, their triggers and emotional responses to those triggers were would leap onto to me. It truly felt that way. I would be “happy-everything-is-going-well-today-Angel” and suddenly I would be hit with anger, fear, sadness, sorrow, love … etc. I would then, spend hours upon hours trying to figure out what I was feeling and why.

Not only did I have my own inability to discern my emotions, but also I had no clue about how to process other’s emotions.

This alone is traumatic add other components such as being abused from childhood into adulthood by loved ones, friends, and significant others. I was emotionally abandoned which I believe played a key role in my need to find someone, anyone to love me and tell me that I mattered AND existed. I felt invisible and confused much of my life. I would also, go into the polar opposite and feel as though I did not need a single person and I was VERY happy all alone.

I would feel as though I did not need anyone to love me. 

Because of my synesthesia (Remember that synesthesia is a spectrum too not one person is a like there may be similarities, but it is different for each individual.) my emotions and sensory are quite intense. That mixed in with my excellent long- term memory (Most of the time, I have another post coming about losing a chuck of my memory that I only recently discovered was missing.) my triggers can take on a world of their own. Well, they did until I started applying mindfulness as my way of being.

Before that, my world felt much more out of control. 

I felt afraid all the time. I never knew what was going to set me off. I did not understand why things set me off. I did not know that other people did not feel emotions as if they were daggers into the body, or sudden attacks upon their soul. I did not know that others did not see music in designs, that paintings dance, or words have powerful punches with sounds, figures, colors, and movement. I thought everyone felt as I did, but I also knew this could not be the case because people mocked me, got frustrated, or called me “strange” when I shared these things. Social confusion has been one of my biggest triggers. I do plan on writing about that too – it is in progress.

In the next post I share what has helped me and many resources!

Part two tomorrow …

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05/25/13

Props To The Old Man In The Car

Deep breath… wow has this week felt never-ending. I wonder why when things happen they continually seem to happen all at once. I cannot remember having a calm moment in months. This week started with me pushing Daniel to do 8 hours of school on Sunday. Yeah, it happened and it was rough. Then, I had to push him Monday and Tuesday in order for him to complete all of his lessons by the designated date. He did it! He did not complete his last two portfolios in their entirety, but he did most of it.

He was exhausted and hit his limits.

He still did his OT, Speech, and reading helps classes. (With a couple hiccups) He was sad that he would not see his teachers and therapists. He does not really know how to process summer break. We hope to get the same therapists next year, but it is not set in stone. It would be very beneficial to his progress if he did. Everyone knows this, but things happen so we just have to wait and see. He will have his Special Ed teacher next year. Yay! She is working on trying to set up Joshua’s assessments  and accommodations too. I am thankful that I know her and she understands where I am coming from. It would be wonderful if Joshua were to get the teacher that Ariel and Daniel had this year for his second grade year.

It would help him because he has met her and ME because she already knows me and I know her.

I am already feeling anxiety about meeting Ariel and Daniel’s new teacher next year. I really hope I can connect to them. However, I am a little freaked out wondering if it will be a man. A man!? Then, I think maybe that would work out better I do tend to get along with men better, BUT what if he is a man that I cannot relate to and he does not understand the needs of my children and he won’t listen to me because I am a woman and he has a voice that gets on my nerves AND he thinks he knows everything in the entire world and and… AND what if it is a woman who is like that and what if she does not understand the struggles my children have and will not listen to me because she does not like me and…

I will stop with the “ands.”

Thursday was the last day of school and my mind hopped on the “new teacher” anxiety train. I did it throughout my entire school career why not do it with my kids too. ;-) OK! We made it through to Tuesday pretty well. On Wednesday, I still had to squeeze five hours of school out of everybody. I managed it, barely. (Same thing for Thursday these kiddos were tired, me too.) However, on Wednesday I scheduled a dentist appointment for all three of them. I know, what was I thinking? That is another post. It went well for the most part.

I planned to have a nice calm day on Thursday.

Um, nope. The floor decided to spew water all over the place leaving nice puddles for Joshua to fall on sliding down the kitchen floor like a Slip-n-Slide. He did not think it was fun. Wet clothes are never a good thing around here for us sensory sensitive folks. As I investigated the matter, I discovered that the kitchen pipe was leaking and it was under the floor causing water to come out through the seam at the base of the cabinets. I had already had a slight panic earlier that day because the owner’s (we rent) sister came by to look at the yard and the frog pond. We told everyone repeatedly that it was bad. We had asked several times for them to send someone out to take care of the landscaping (it’s in the lease) and each time they said someone would – no one came.

I was told NOT to touch the landscaping; we are to take care of the grass and leaves.

We have been trying, but the leaves are ridiculous because we basically live in a forest. The grass is looking good. I was nervous because even when nothing is my fault I take responsibility for it. I feel badly if something is wrong because I feel as though I am responsible for this house because I am living in it. I felt the same way with the kitchen pipe. The frog pond is a mess and we discovered that it was supposed to be covered. The cover is in the garage. No one told us and the gardener was supposed to put it on!

We are not responsible, but I still feel bad.

I felt anxiety about that and because of the anticipation of her coming. She DID NOT come at 8:30 am when her sister said that she would be here. With every minute that she was not here, the more anxious I got. Finally, I told David he had to talk to her. I was almost in tears at 8:49 am when she finally arrived. Then, we had to wait for a maintenance person to come and check out the kitchen. I could not think straight, my head was fuzzy, and I felt panicky and nervous until the guy arrived.

Thankfully, the kids had computer reading classes that they could do.

He discovered that the main kitchen pipe burst and he made plans to come the next morning. (I am getting to the old man part, hold on. I am sharing all of this because these factors contribute to Daniel’s response that I share later in this post.) He had to take out the pipes and replace them, turns out it had a slow leak from the time we have been here or before. I had to make unscheduled plans with the kids because well, it is just much better to take the kids out to do something than to try to explain every single what, why, where, when, how, so and so forth to Daniel. He would have been too anxious about everything going on. The noise and smells would have sent him to a massive meltdown.

I decided to take them to the park, have a picnic, and to the library.

We went to the park and a little boy tried and tried to make friends with Daniel. He asked him his name, and then asked me his name when Daniel would not answer him. I told Daniel to tell him his name and asked him if he wanted to play with the boy. Daniel said, “No, I don’t want to.” So I called for Ariel, but the boy did not want to play with her. I called for Joshua and they were a perfect fit. They played the entire time. Daniel was happy doing his thing – alone. Ariel was sad because she had no one to play with. I decided that she and I needed to play on the bars and the monkey bars.

There were groups of preschoolers coming in and out while we were there.

Daniel loved it because he likes to play with younger children and he LOVES babies. He is so cute to watch. He is very gentle and smiley with them. Another little girl who seemed about Ariel’s age came, she was very shy like Ariel. I decided that I would try to bridge the gap. The girl became comfortable talking to me, it helped that I was doing flips and hanging upside down off the bars. She and the other little kids thought I was the coolest mom. Daniel even started to participate by hanging on the bars and said, “Hey, mom look at me!”

After a little while, the girls took off to play among themselves.

000DRAFT-do-not-criticize-what-you-dont-understandI stayed back helping little kiddies get on the bars and swing back and forth. I thought to myself, I am very good at making friends for others, but not for myself. This has happened numerous times in my life. I have been able to connect people and they become friends then, after the connection it  seems my part is done. Just an interesting tidbit. 

We had our picnic and headed to a store so I could grab something to eat.

I did not have enough time to pack myself a lunch and I was starving. Everything went fine, but Daniel was showing signs of being overloaded. I managed to get him out to the car and that is when it happened. I stopped Daniel from going into the car first because Ariel and Joshua have their seats in the back. They needed to get in first; I had been telling him this all day and he kept forgetting.

When I did it this time, he lost it.

He started yelling at the top of his lungs, “I keep forgetting! I keep forgetting. Why do I keep forgetting?” I looked around not to see if there were people around, but because I was confused by his response. I did not understand why he would be so upset about forgetting something. (Of course, I did! I do that too.) As I looked around though I saw in the corner of my eye the old man sitting in his car right next to us, window down listening to the news on his radio. I ignored him, quickly hugged Daniel, and said, “It’s ok, we forget things sometimes. It is ok to forget.” He was banging his body into mine and then, he tried to pull away from me screaming a blood-curdling scream that ripped through my ears.

He would not get into the car.

He started crying, repeating, “Why do I forget? Why do I forget?” I continued to reassure him that it was ok and there was nothing wrong with forgetting and that there was nothing wrong with him. He did let me hug him and give him some deep pressure, which calmed him enough to get him into the car. When I got in, I asked him if I needed to take him home to have a break. He said, “NO! We are supposed to go to the library!” I told him that we could not go if he felt like that because it may be too much for him. I reminded him of how much we had done and that it was ok if we needed to go home for a break. He said that he was going to be fine and that he did not want to go home.

I buckled the kids, got out of the back, saw the old man, and said, “Sorry, for the screaming.”

I was sorry that it was so loud, I was not sorry for anything else. I must give some props to the man. He did a head nod, a little finger up move without a judgmental face or word. I got into the car took a deep breath, opened up my turkey wrap and off we went to the library. The library went great. A few moments of “almosts,” even though Daniel was tapped out he still wanted to stay. Ariel and Joshua were tired and really wanted to get home. Luckily, grandma was coming over to give me a break so when I told Daniel that she would be there soon he was ready to leave right away.

“Grandma with the white hair” trumps ALL things for Daniel.

I know I shared quite a bit in here, but I had a lot to process. These are outside sources that have affects on me (and the kids) inside my mind there is another whole perplexing and complicated world mixed with emotions, social, sensory, and whatnot. I was happy with the fact that yesterday I had no thought whatsoever about what another person might think, say, or do when Daniel was having a hard time. I am glad that I was able to understand his frustrations about forgetting. I was happy that I could help him and have the situation end with him feeling good about himself. I was VERY thankful that the old man just sat there.

His head nod, finger move, and nonjudgmental silence made me wish a lot more people would do just that.

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05/22/13

Autism & Wandering: My Child & Me

I had hoped to participate in the flash blog for the family of Mikaela Lynch, (I linked to her aunt’s post there.), but I found myself overcome with too much emotion. I was unable to find words. However, others were able to share here An Outpouring of Love for the Mikaela Lynch Family. I held back more tears as the news came in about two other children who had wandered and lost their precious lives too. Deaths of 3 Autistic Children Call for Better Anti-Wandering Protocols.

Even now, the tears are welling up and I am trying to get the words out.

My thoughts, prayers, and heart go out to these families. I was shocked and deeply troubled by some of the negative responses that were being said when a family needed community support the most. People need to become more aware of the dangers of wandering and we need more understanding with positive action. Inner Aspie shared a post Autism & Wandering Awareness-Guest Post By Sheila Medlam Founder of the Mason Alert Foundation that I feel is an excellent article that gives information about Mason Alert. Inner Aspie shares her own experience with wandering/elopement in this post The Scariest Words An Autism Parent Never Wants To Hear.

What I have seen is that when Autism and wandering are mentioned it is normally associated to severely Autistic.

However, in my experience that is not the case. Daniel, though at the times of the scariest events he was non-verbal, had no understanding of danger what-so-ever, barely acknowledged anyone but me at the time, and had no way of communication other than yelling, self-harm, or throwing things. He was still considered “high-functioning.” I have briefly written about Daniel not being aware of danger and wandering. When he was younger, he had no sense of danger and would wander. The day he was almost hit by a car sent terror through my body. I had him, he was in my hands, and it was within seconds that he escaped my grasp because the sounds of dogs barking scared him. I cannot remember what I did, but I managed to grab him before he ran in front of the car.

There a couple of occasions that Daniel got out of the house.

I recall one time I went to the bathroom for only a couple of minutes, though it was a rare occasion that I even went to the bathroom without the three little ones wrapped around my leg, that day it happened. All three children had gone out the locked back door in only a few minutes. I came into the living room to see no one. I went to their bedrooms and nothing. The panic slowly crept as I yelled to David, “Are the kids with you?” My mind can go from happy to worst-case scenario in seconds. It will flash images of everything possible before I can think clearly. I have to filter through it all to think straight. My eyes darted around the room. The gates were up I found it odd. David replied, “No.”

The door was shut, but the curtain caught my eye.

It was out of place. I pulled them open to see Daniel and Joshua on top of the covered kiddie pool. I burst through the doors leaping outside before I could think pulling them off the pool, thinking that I was the worst mother in the world. Joshua was only one-year old and he was going head first into the water. The pool was covered, but rain had filled it enough to where any of the children could have drowned.

It was terrifying.

The other thing that sent complete horror down my spine was that there was a pond only a few feet behind our house. I hated that house for many reasons, but one of the reasons was that pond. After that day, we placed an alarm on the back door so that would never happen again. Another time that sent me into utter panic was when I was loading the washer and dryer. The house was an open floor plan so the washer and dryer were in a closet in the kitchen. The kids were in the living room right there. When I finished loading them, I turned around and did not see Daniel, within minutes Daniel was gone.

I went to look for him in his bedroom.

He had broken open his bedroom window and his window right next to the air conditioner. His obsession with fans was insatiable. (He would run away from me in stores, outside to the back of houses, to people’s fans in their house; if he saw or heard a fan, there was no stopping him.) Thankfully, I got to him before he stuck his fingers into the air conditioner fan in the back yard. Alarms, locks, gates throughout the house, in his doorway, and holding him tight when going out in public was (is) our “normal.”

We no longer need gates.

We still have everything locked in the house, and alarms on the doors.  This is another reason why Daniel sleeps with me because he is prone to wandering. Now he knows how to open the doors and he even knows how to turn off the alarms. However, he is too fearful that he may accidentally set it off so he does not touch it unless he asks. If I do not keep my eye on him or cling to him, he could leave me within seconds at certain places. In stores, it has happened and my shrilling voice yelling for him has filled the air. Now that he is older he does not venture far from me, there are still times when it happens though. There is a plus side to his anxiety about losing me. However, when he is overloaded by sensory input or socially he loses awareness of his surroundings and can become confused.

Me too! 

This past year there has been significant improvement with him becoming aware of his surroundings and possible dangersIt has happened through his speech therapy, his therapist has used many problem-solving scenarios with safety and danger because this was a huge concern for me. When we first moved here, almost a year ago, there was no way that I could take him into the front yard. The fears consumed me that he may run out into the speeding cars that go down our busy road. He almost did the first week were here! I am hypersensitive to keeping him in my sight at all times. However, it is not possible to do that each day. I used to wait for David, or take all the kids with me to the bathroom to ensure they were not out of my sight after the “pool scare.” I did not even consider that my non-verbal four-year-old would figure out how to open his bedroom window.

I still do not take showers unless I know that David can be with the kids.

I was a wanderer too. I still am. If I do not make a conscious, effort to stay focused and run scripts through my head I will get distracted and wander. My kids have helped me with this because my responsibly as a parent trumps whatever my wandering trigger is. I caused my mom great fear on several occasions because I left the yard and wandered around the neighborhood. I ran away at the age of five. I also, was a sleep walker and would go out the back door. My mom was afraid one night I would just disappear. In stores, I would be gone in a flash. She became so terrified that I was no longer allowed to be out of her sight when we went places like the store or parks – ever!

She became even more protective than she was before.

Strange though, she would let me play in the yard for hours by myself… as long as I did not leave the yard she was fine. I was drawn to water, my son is drawn to water, and we love water. Not all Autistic’s do, but there is definitively some affinity for many of us. I learned to swim at an early age for some reason my mom made sure of this. Possibly, because she too loves to swim and loves water. Daniel is still unable to swim. I am currently teaching him, but he wears a life jacket. He now refuses to get into the water unless he has one on. He does have a fear of deep water now unless I hold him or he has his life jacket on, I am not sure where that I came from. It started last year.

That is a small bit of Daniel’s story in hopes of bringing some awareness. 

Wandering and elopement is a real concern that people need to be aware of and more sympathetic to. I do not believe that it is only severely Autistic people who wander and elope. I could be wrong, but I do not think that I am the only one who may still struggle with this and who also, did this as a child. Here is a little more about my story. I have wandered into places that were extremely dangerous with no understanding as an adult. It was not something that I thought about, I would get a whim of thought or become interested in a person or object and off I would go. I did not think of telling my friends where I was going.

I did not understand until my friends freaked out on me when they could not find me.

They still had to explain to me why they were so upset. I did not learn my lesson when my mom continually told me not to leave the yard. If I became distracted, I was gone. If there was a butterfly, I chased it! I was not aware that I was out of my yard or away from my mom. I was not aware that something terrible could happen to me if I went wandering in the wee hours of the night as a teenage girl and as a young adult. (Or even as a 30+-year old!) I did not really understand danger unless I would get a very strong sense of something being “wrong” in my gut.

Still I was not sure what it was.

I would only hear things in my head like, “Run home as fast as you can!” “Get to your car, now!” That happened on several occasions. There are days when I know that I should not leave the house because my head is too fuzzy and unable to discern my surroundings. There are days when there is no way I will take Daniel outside because he is unable to comprehend danger and he loves to walk all over our yard. I still have to hold him tight in parking lots because he does not understand that the cars could hurt him.

I am fairly certain we will have alarms on the doors for a long time.

I am not sure how long; we were only able to get rid of the gates last year when we moved into this house. We still need to work on these things in therapy. Possibly, he will be better equipped than I was because he is being taught in practical and realistic ways. He is learning how to be safe, why wandering is dangerous, and how to remain observant of his surroundings. It is not a matter of poor parenting, or “should have’s” it is about equipping our community and ourselves. Some Autisics will never be able to comprehend the dangers of wandering. That is why as a community we need to spread awareness and help with ways to educate those who have no understanding. However, we also need people to be open-minded, understanding , and willing to listen.

Please be a part of building into the community with your empathy, sympathy, willingness to learn what it is like for us with Autistic children, and challenges that we face.

What’s The Deal With Wandering?

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