07/22/12

Food Stuff, Diets Egad! Movie & Documentary II

I am very much stuck on the second movie I watched. America the Beautiful 2: The Thin Commandments. (Probably because it is a documentary and I love documentaries.) It made me cry too. I wanted to scoop up all the women in the world who suffer from poor body image, hug them, and cry with them. That says a lot because you know I am not about the hugging! Hee hee There are many aspects of this movie that touched me. I thought it brought some perspective into the dieting industry, trickles of the modeling industry, and different perspectives from people all living their lives on a body image spectrum. One extreme to the other, balance and discontent, eyes blinded and eyes opened. I watched this with a heavy heart for all of those who have fallen for the “diet lie.” I have never been that good at dieting, but good at starving myself.

The western culture seems to thrive on diets. (obsession)

The scale has never been a realistic tool for me. I cannot determine what is the difference between 98 pounds and 130 pounds they look the same in the mirror. I did not have a realistic view of my body when I was pregnant either. Quite honestly, I thought I looked skinnier pregnant with the twins. Explain that! No clue. I thought I was huge with Joshua. See no rhyme or reason to this stuff for me. I found several resources that I plan to devote more time to, but skimmed over today. One was this HEALTHY BODY IMAGE Teaching Kids to Eat and Love Their Bodies Too There is a lot in this, but I am sharing some info about dieting.

Dieting as a solution

There is widespread agreement that, for those who want to lose weight, dieting (eating according
to a prescribed plan to limit food intake with the goal of weight loss) should be part of the
formula. As previously noted, dieting has become a normative eating style in the United States.

The diet mentality remains strong despite significant empirical data and clinical outcomes
showing that restricting calories or food groups for the purpose of weight loss is
counterproductive for weight loss in the long run. In fact, for mentally well individuals, dieting
for weight loss reliably produces results that are not only contrary to sustained weight loss but
frequently result in weight gain. Studies show that dieting behaviors consistently and reliably
lead to:

  • ƒ An increased preoccupation with food and difficulty concentrating on anything else.
  • ƒ A dramatic increase in food cravings, especially for calorie-dense foods, such as sugars
  • and fats.
  • ƒ Irritability and depression.
  • ƒ Decreased metabolic rate.

In the documentary Darryl  Roberts is addressing many issues about dieting and body image in the U.S.

I wanted to shout and get on a blasting horn sharing with people about men who have eating disorders. There is such a stigma and young boys, and men alike are suffering from eating disorders. Their image and appearance is becoming just as important this day, as it has been for girls and women for all of these years. It is something that needs to be talked about and addressed. Eating disorders cause you to live in secret, depression, and shame. Not only that if you have an eating disorder that helps keep you skinny people think it is a good thing. If you are thin, the lie that has been sold to us is that “thin people are healthy.” Believe me there are many thin people out there who are not healthy.

We all have to find our balance. 

Healthy bodies are a spectrum. There is no perfect mold. The thing that matters is accepting yourself right now. After, all of the false ideals, images, stigmas, and comparisons start to fall at your feet then; you can see the beauty and talents that have been there all along. (Waiting to explode and enhance because they finally get the attention they should have had from the beginning .) It may take a change in diet and lifestyle to help the body feel better, and the mind feel more balanced, but it should not become an obsession or a false hope that everything in life will be better now that the body has changed. The mind has to get healthy too. I do not understand why there is so much appreciation for “beauty” instead of intelligence, or talents. Our body images need to become healthy. How do we even determine a healthy way of thinking about body image? I am seeking information on that now. I hope I am making sense, I do not mean to offend anyone. I have seemed to lose my train of thought.

I will end here with some resources and hope that it helps. 

I provide these finds for you to read if interested. I have not read all of them all the way through some I have skimmed, but I will be reading them as I continue to process. They may be a load of hooey or some really great information. I believe I found several great resources – I am only forewarning in case anyone reads something that seems off. I started to get a bit miffed at all of the articles accusing mothers only so I went in search for father influences as well. I am disturbed by the lack of information about boys and men and the fact that eating disorders seem to be only categorized in society’s mind as anorexia and bulimia. Binge eating does not seem to pop in people’s mind when thinking of eating disorders. I decided to read up on it.

Binge Eating Disorder (BED) is a type of eating disorder not otherwise specified and is characterized by recurrent binge eating without the regular use of compensatory measures to counter the binge eating.” 

Binge Eating Disorder

Understanding Compulsive Overeating (c) Copyright by Judy Lightstone

Eating Disorders in Men

“For years, eating disorders have been viewed as a “white woman’s disease.” And estimates of male eating disorders told a similar story: while the majority of women suffered from eating disorders, only about 10 percent of men did.

Recent research, however, paints a different, bigger picture: more men are suffering from eating disorders than previously thought. Out of 3,000 people with anorexia and bulimia, 25 percent were men (and 40 percent had binge eating disorder), according to a Harvard study.”

Find specific information regarding eating disorders in men and boys.

“While women are more commonly affected by eating disorders, more than a million men and boys battle the illness every day.”

Children and Eating Disorders:A Review of the Literature Emily Major

Healthy body image: Tips for guiding girls

“Make sure your daughter knows that she can always come to you with questions or concerns about her body or self-image.”

Encouraging a Healthy Body Image

Gaining A Healthy Body Image

“More than anyone else, you know your body, and you’re the only one who can determine what foods, exercise programs and amounts of rest will allow you to function in optimal health. Begin making the choices that will lead you there.”

Your Daughter’s Eating Disorder Is Your Fault

How Do Mothers Contribute to Their Daughter’s Eating Disorders and Weight Concerns?

Vicious cycles: mothers, daughters, eating disorders

Dads may influence eating disorders

“The study found that fathers have an important influence on their daughter’s perceptions of their weight and shape during childhood. In fact, they appeared to have a particular influence when it came to the eating disorder, bulimia.”

The Perceived Influence of a Father on His Daughter’s Development

“Available fathers who talked to, praised, and responded to their daughters boost their girls’ social responsiveness and positive feeling about self beyond the level of those girls whose fathers were uninvolved” (Krohn & Bogan, 2001, Secure Foundations section, ¶ 1). A girl’s body image is significantly affected by the culture in which she lives but also by the way men in her life view her and other women. It is far less likely for a girl who has a loving, praising father to succumb to an eating disorder in order to feel better about herself.”

Influence of Parental Eating Disorder on Children

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04/20/12

Tired Ramblings

I feel so fatigued and I am not sure why other than my restless sleep from last week. My body is still trying to catch up. My mind is fatigued too from all of the mental energy I have been using with socializing, trying to keep all of us focused with school, and my house that is a mess, and causing much stress! So today, I am rambling about whatever pops into my head. Like how I really, REALLY like…no love Udi’s Gluten Free Bagels. OMG! Those things are awesome! I haven’t been able to find some tasty gluten-free items like that around here. Until, the last few weeks. We had a nice and lovely Publix open right across the street. (Kind of across the street, ok a major highway that is practically across the street.) It is the most wonderfulest store in the entire world! (I have few to chose from here.) I am not saying that just because both of my sisters work at Publix, and my one sister happens to work at that very one with all of the lovely gluten-free items.

We have not had a store around here with many gluten-free items.

The items that are around here have been ridiculously priced. We have been limited to Amazon bulk buying, and limited items on there as well. I was making many of our items like bread, and pastas, but it started being more expensive so I went for the packaged noodles and bread. I really like many of the products, the kids do not mind so much, but David is not a fan of the gluten-freeness going on around here. He has his gluten-filled stash upstairs — some are down in the pantry. It helps to have it hidden otherwise the questions, my goodness the questions! They do not stop about gluten-free/gluten. What has gluten? Does this have gluten? What is gluten? Why can’t I have gluten? What happens when I have gluten? Why, why, why? Daniel absolutely cannot have gluten, for some reason it shuts down his communication and he goes into what looks like seizures. He does that with milk also.

Ariel and Joshua do not have that problem, I do have to limit their intake.

They go through emotional roller coasters when they have too many gluten-filled products. They also get very lethargic, and drained, sometimes with bellyaches. They are fine with milk. I cannot have gluten (much) or milk. I do not lose my ability to speak, but I do get very sick, moody, tired, and many body aches. Why am I talking about this? Because I was thinking about us moving and I am so excited that there are several restaurants where we are going that have gluten-free menus! Biaggi’s has gluten-free pizza! Pizza! AND Pasta! My eyes are rolling all around in food fantasy. I have not been able to have pizza other than my homemade pizza. It turns out pretty good, (after practicing) but to be able to go and eat pizza from Biaggi’s Yippie!!

AND Cheeseburger in Paradise has gluten-free buns!

Oh, I love those burgers! I am hungry and don’t want to cook tonight, can you tell? I do not normally give such attention to food. One restaurant here just started serving gluten-free buns and pizza, but their food is so-so. Plus I got offended at them for offering 10% or 15% off (I can’t remember) for people who bring in a church bulletin on Sunday. I looked at the sign and asked “What if I am an Atheist?” No one else seems to understand my issue with the injustice, but I am boycotting them on those grounds. :-) I don’t think it’s right for me to get a discount if I go to church, or if someone doesn’t even go to church and they just get a bulletin! I just find so many things wrong with the whole thing. Lol!

All right enough of that.

I have no great insights today. I am very silly, and feel like playing. I have decided that I need a live-in house helper to help me stay organized because no one here is able to help me. I need planograms and I need everyone to follow them. I just cannot keep up by myself. I get overwhelmed and unraveled with the mess that is starting to creep into my clean cubby area of solitude. My computer is the only one faithful at staying organized, and the iPad. Speaking of iPad, yeah I am not getting one (yet). I’ve been debating on an iPod or iPhone. It looks like I will be getting an iPhone since I will be out wandering all over the town and such when we move. People apparently want to get a hold of me and want to hear my voice. Blah! I am sure that it will turn into my new best friend and I will love it dearly, and will get angry at it with its tiny little touch pad driving me nutty and spelling things all wrong! I need a nice sturdy case so when I get angry I can throw it without any worries. I used to be a phone thrower during fits of rage. I broke many of my phones. Poor phones.

I have been working on different types of poems.

I have several Haikus and Cheritas that I have written. That has been fun — I am not ready to share yet. I usually just go all free style because I am so fancy free you know. Hee hee  Maybe that is making me tired too — trying to use a formula for creativity can make me drained. I have enjoyed pushing myself though. We have been learning all about poetry with school this week. They have not felt like writing too many, but we have been talking about the different types, and playing around with rhyming and songs. I think I have rambled long enough. I cannot remember the main reason for me writing this post. I had something to share I thought, but I got sidetracked with all of the gluten-free talk. I will leave with the video I took of the kids this morning. My silly birds! The boys will not let me cut their hair. It made me laugh flopping all about.

 

My Babies Being Birds

Oh, and this. Fun!


 

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02/12/12

Social Frenzy Week

This week is packed full with social events. I am not anxious at all! (At the moment that is — it can change at any time.) Although the entire middle of my back is getting stiff, it is moving up to my neck, and my right shoulder is hurting. My body could be protesting. :-)    All of the things that I am doing I want to do. I think that makes a difference. I can hardly contain my excitement for tomorrow. The movie The Artist is here!! I am taking my mom to see it tomorrow afternoon. I had not given up my search to watch this movie in a theater. Even though I am not a fan of theaters nowadays, this movie MUST be seen in the theater. It is only here for this week and tomorrow is the only day we can go.

When I discovered that it was playing here I did jump up and down and got very excited.

My mom responded the same way when I told her only instead of jumping she clasped her hands together shaking them with excitement and clapped. She is more reserved than I am. :-) We had a hard time deciding which day to go because we are booked this week. What? Yes, we are quite the socialites. We have been out and about a lot more lately, but my mom has been out of control. She even went to the play “The Rat Pack” with one of my sisters Friday night. It sounded great I wish I could have gone, but it was too pricey.

It was amusing listening to us yesterday trying to make plans to go to this movie.

Several months ago we had noticed how we basically trapped ourselves in our houses only venturing to “safe” places. When my mom came back from her cruise she was rejuvenated. She remembered how social she actually is. I was rejuvenated as well because I got a bunch of words out of me that needed to come out. My mom shared with me about my sister being very upset with me — not exactly with me there are other factors that play into this, I will not share. She has been upset because I have not been myself. She has made comments about me being a social person, and how I like to go out and do things. I have cut myself off from the world for several years. Both of my sisters here have been upset with me because their words “Sissy is not being herself.” They are right. I am social, I like people, and I enjoy doing new things and venturing out. I also have had other things in my life to cause me to stop being that person.

I do have my own anxiety about social activities, but it is because of the unknown.

It is mainly because I never know how people are going to respond to me, or if I have never experienced it I can have overwhelming anxiety because I don’t know what to expect. It’s not that I don’t want to go out and do things I do — it is that I can talk myself out of doing them. My mind will come up with every scenario that could possibly happen, and then the thoughts of “What if I have not thought of something?” It can throw me. I am able to hide it well in front of others, but it can be weeks before I am ok again. It wasn’t this difficult when I was able to take time by myself. I have not been able to get the downtime I need to process after a social event since having kids. That is not a complaint in the least, it is a fact. It is hard to process on a daily basis for me period — I am now responsible for helping three little ones learn how to process for themselves.

I will say it has been much easier to be a shut in instead of even attempting to deal with other people.

This week will be a challenge for all of us, but I think it will be good as well. Tomorrow I am leaving, and going to the movies with my mom. Yea! Tuesday we are going to a da… ta…da…da…BARN WEDDING! Ha! I cannot wait. I really like saying that I am going to a barn wedding. It sounds hilarious to me. I have so many visuals and I am afraid the wedding will not live up to my great expectations. Sigh…I am bringing my camera in hopes of some great barnage wedding footage. We will not be staying for the reception it will be too much, but I think for the kids to have an experience like this is great.

On Weds. David is taking Ariel and Joshua to see Star Wars: Episode I.

Yeah…I am not sure how that is going to go. David’s birthday is coming up and that is what he decided he wanted as his gift. Daniel cannot go to a theater. I am not sure how Ariel and Joshua are going to be able to handle it, but they are bringing their noise cancelling headphones. The 3D thing is a concern for me, and that they will be about half an hour away from me! I am not a helicopter mom, it is not that I do not trust David with his own children — it is just that they haven’t gone out with him before for that long or that distance away. It’s new for me and they are my babies. I hope someone understands what I mean.

On Thursday I am going to Bible study at moms.

This went really well last week. I was late and that threw me, but my friend was there and she got a new job working as a counselor with children/adults with ADHD, on the autism spectrum, as well as people suffering from depression and various issues. She feels overwhelmed because newcomers to these parts of the city are never welcome! Sometimes it feels like Deliverance around here. Oh, I kid! Well…kind of. Seriously, she was thrown into counseling sessions with adults that need serious help. She has all the schooling, is naturally able to talk to people, has spent two years being my friend and listening to all of my autistic issues, but when it is in real life situations with people you do not have a relationship with it is completely different. I feel for her because it is a new experience to actually meet people with the issues that she has learned about.

I am a good faker with that stuff so she never knew when I was really upset, or depressed.

I didn’t hide it on purpose it was the only thing I knew how to do. I was more open with her about my issues though, and I know that she will be great with helping others because she cares and sees the responsibility of her position. She also told them that if they did not talk to her and help her learn about her job, then she needed to quit. That changed their tune. Maybe her interactions with me will help see things in others. She is a counselor who will make a huge impact in people’s lives. I digress!! On Friday I am going to a play with my mom and sisters at the community theater. They do have art and culture on the island around here, though very small and limited still there is some. The play is Into the Woods.

And then Saturday we crash.

In celebration of crazy social week I made Homemade Gluten-Free Strawberry Shortcake with Airy Fluff! I even gave the kids a WHOLE one because I didn’t put much sugar in it. I made my own recipe for the shortcake biscuit like things — I forgot to write it down. I hope I can remember it because I even ate one and it was G-O-O-D. Indeed. I have a weakness for strawberries. :-) I did sneak some puréed zucchini and squash into that shortbread. No one could taste it. My little secret. Hee hee I had to show pictures.

 


 

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11/5/11

Birthday Party!

Daniel and Ariel turned 7 years old this week. We celebrated their birthday today. I finally made cakes that were pretty decent! The Lego cake I made for Joshua turned out pretty good, but Ariel requested a dragon cake and I was not sure how that was going to go. I am happy with the results she loved it and thought it was “so cool!” Joshua said it was: “Awesome!” and Daniel loved his clock cake.  Although, my fondant work does need improvement, but being my first attempt, no proper tools…I was told not to be hard on myself so I will stop. Happy kids, happy mommy. Ariel had a dragon and Lego birthday. She is SO excited about all of her gifts. Daniel was very excited about his electronic drum set and snap together helicopter.

We have been building for quite a while.

We are overloaded and tired from all of the excitement, but it has been a very good day. Ariel and Joshua have both had a meltdown…I am working on mine. Just kidding. However, they were short and they bounced back fairly quickly. I am writing to help me have a little down time. Daniel is doing great. At this moment he is playing with his mousetrap game. I used to play mousetrap by myself all the time for hours, my mom even remembered that today and mentioned it. I thought Daniel may like it as much as I did. Actually, David mentioned it and I remembered my playtime with the game. The last few weeks have been both challenging and awesome. We have done things that I was not sure we could ever do. Daniel has been using the potty for “everything” for the past two weeks. We are still working on bedtime, but he has done it!

He is so happy and proud.

He is even refusing to let me help him get his pants on. Big change from refusing to go near the potty unless I was right next to him. He does tell me every time he needs to go, and I have to say: “Ok, Daniel, you can go potty.” He feels that he needs permission for some reason. He does that with his food too, he asks if he can eat whatever it is before he will eat it. The answer has to come from the person who gave it to him otherwise he will not eat it. He will continue to ask over and over again until he feels satisfied with the answer. :-/ Hopefully he will feel at ease eating without asking soon. :-)   It is so wonderful to see how much they have grown and all of the great things they are learning and doing. AND I am so happy that I finally made a cake the way Ariel wanted! I am also so happy that I did not have an anxiety attack, meltdown, or shutdown before the party. I will take it easy and let my body recover. I am pretty fuzzy headed and the Lego’s call. Today is one of the best birthdays we have had. :-)

Birthday pictures! (and the sky ’cause I liked it)


 

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09/19/11

Hodgepodge

This post is going to be filled with a hodgepodge of things. Several things that I do not feel like separating into individual posts. I tried to make it like a “Wordless Wednesday” post, but I am basically incapable of being wordless! I am a very “typative” person. :-) Here I go. I have not been able to sleep through the night in days, so many days now that I cannot even remember if it’s only been a week or longer. I can usually fall back to sleep at some point after an hour of rolling around and tossing about in bed. On Sunday morning though, I could not. I woke up with a post about moving swarming in my head. It was 2:30 am and I was wide awake and my brain would not leave me alone.

I had to get up and write that post!

So at 3am I went into the school room on the kids computer, in the dark, eyes barely focused, and wrote out that post. For some reason I had to have it finished before later in the morning or day. I still have no idea why other than I was able to sleep a bit more after 4:30am when I posted it. That was another strange thing, I posted it without really going over it. So what happened? I go back to read it later that morning and see that I called David, my mom and myself “idolators” instead of isolators. In the past I would have had a panic attack at the thought of anyone reading that, this time I laughed. I am still laughing. How funny, idolators.

I think my brain needed to process the information.

The topic of moving has been flying around for over a year now. We had not found a location that was a good fit. Again, going to another city where I do know anyone or have any family at this point would not be a good thing for me. Everything that I wrote about in Big Changes…Possibly, have been concerns for a while and there are still other issues and factors that we are dealing with that I have not written about. In the past week the idea of moving to my hometown has become a real possibility. Actually more than that, we are about 96.8% sure that we will be there this time next year.

I still am not sure how I feel about all of that.

I am not going panic, I am going to process. We will be about three hours away from my dad which is a good distance. Small doses to enjoy him. My grandma lives in my hometown as well so she can help me and go places with me and the kids if I need help. Or she can babysit for me. I am not too sure about other family members, I am not close to many of my family members. Mainly my aunt is the closest, I tend to feel awkward around my grandma too, but I do not feel like talking about my awkward disconnect to family. I am sure I will have a ton to write about when/if we move there. She was planning on moving here, but she has continued to put it off and prolong the whole thing. I could help her get her house ready to sell, that may be one of the issues for her. She has friends and family there also and it may be hard for her to leave. She is quite the social butterfly. Here she would only have my mom and other two sisters. I am just writing anything that is popping in my head so I am stopping on this topic.

Good news!

Daniel pooped on the potty yesterday for the first time!! Sorry for the poop talk, but that is a VERY big deal. He told me on his own that he wanted to and he sat and did it. He was very proud of himself. :-) Another great thing happened yesterday. We were sitting on the couch together, he has started asking me to sit next to him and then he practically sits on me so we are working on boundaries. He wants to sit next to me and talk. HUGE! He was telling me all about his clock as we sat there. He told me all of the things that he likes about it and how he likes helicopters and that the reason that he likes them is because “how they work”. He has never given me a reason like that before, it has always been because “they spin” or “they make noise”. Then, during a moment of pause, he turned to me looked me straight in the eyes and asked: “What do you like mommy?” And then he listened and asked me questions about it. He wasn’t just following a script, he really wanted to know.

It was a great moment.

I have a lot to process in my life right now and as I am processing I do/say things that seem to contradict each other. A major one is working out and baking. I love to do both. I do make some healthy treats, but to be honest I do enjoy making sweet, tasty baking delights that make people smile and get them on a sugar high. Not the kids of course, but other people. :-) I do share the treats with the kids and they get so happy and surprised that they can “have a cookie for a snack!”. I do enjoy making things with the kids. They love to help me and we learn measurements and chemistry in the process. I cannot really think of anything else to write about at the moment. I think I just needed to get some things out so I could process some more things.

I will leave with some photos of some gluten-free delights and who knows what other pictures will show up.

There are some Lego Dragons, school shots, raspberry oatmeal muffins, peanut butter/banana/oatmeal bread (I will not eat! Two things I dislike very much peanut butter and banana.), lemon cookies, granola bars and bread…I think those are the only pictures I put on of food. I tend to bake a lot and not eat any of it. I will freeze them for a later date for when I have a sweet tooth. It’s the process of baking that helps me not the eating it. Besides sweet things are good…in moderation. The same goes for working out. Moderation, right? :-)


 

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04/3/11

Trying To Stop My Loop

I really need to take a break from the computer but I cannot seem to pull away. I didn’t realize how much emotion I would feel having so many social networks sharing so much about autism awareness. It gets me thinking about all kinds of things and it brings a lot of mixed emotions. I tried to have words to write but I have too many words that are crashing together and not flowing, along with no words at all. It’s frustrating. I felt that I wanted to get this out because my mind is going round and round and is fixated. Right now the only way I am really able to express myself is through writing about the pictures that are like Polaroids flashing in my mind. I also have my life playing like a movie over and over again and I am hoping that by writing this it will help me to stop fixating. :-) So this is what came out.

Autism to Me

The light that shines in my darkness.

The answers that healed my heart.

The frustrations of not understanding.

Discovering that my mom and I just misunderstood each other throughout my life.

The joy of being able to have freedom.

The day he finally spoke.

When I scream at the top of my lungs.

The time I danced and leaped because he used finger paint.

The time he flipped out in the store and all the people stared,

I carried him to the car and cried.

The time he flipped out at the checkout,

the cashier and people behind us glared, AND I no longer cared.

The smile that woke me up this morning.

My daily struggle with anxiety.

My very loud laughter when I am not supposed to laugh.

Me laughing with my kids when they are laughing….and they are not supposed to laugh.

Us going out in public in whatever we want to wear!

Me bringing specific foods for each of us so we can participate in society.

Painful feelings of isolation.

Exuberant feelings of relief.

Hours in the bath tub.

Being terrified of the phone.

Having sleepless nights.

Being afraid and not knowing why.

Needing comfort and not knowing how to get it.

Longing to be with people but not know what to say or when to say something.

Not wanting to be around people at all!

Being happy being alone at times.

Seeing things that other people never see.

Saying the things people want to say but never do.

Staring blankly but thinking many things.

A mind that never stops.

Having batteries, fans, typewriters, recorders, and cameras as toys.

Collecting many, many things.

Organizing things.

Dumping things.

Jumping, running, pounding, clanging, pouncing and spinning.

Not wanting a hug but needing one to find calm.

Crying because writing is too hard.

Screaming when shampoo is put on their hair.

Walking out in front of cars because he is so desperate to get away from something.

Listening to hours of talking about fans, Lego’s, animals, games and social situations.

Learning new teaching techniques and therapies, to finally find the ONE.

Realizing that there is no just ONE.

Discovering that people do not think the way I do.

Learning social scripts by writing social stories for my kids.

Anxiety, fear, joy, laughter, pain, goodness, something new almost every day.

My whole life.

Everyday, my past, my present and my future.


 

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02/25/11

What To Get Daddy

The other day was David’s birthday, I was so excited about making a gluten-free, yellow cake with chocolate ganache frosting adorned with raspberries, from scratch. I’m not bragging I am just very excited that I finally got one of my homemade cakes to look half way decent! Well compared to my others.

At least they taste good. (Pictures below for comparison.)

After the kids were in bed, David and I discussed how it came about that he received the gifts that he did. The kids explained it to him but there were some important observations about how they processed through their ideas. I asked each child what they wanted to get David for his birthday. Here is what they came up with.

Ariel: I want to get Daddy lotion. He has dry hands like me and it will help heal his hands.

Joshua: Lego’s!
Me: Daddy does not want Lego’s. You want Lego’s. What do you want to get for Daddy?
Joshua: A box, like mine for his doctor stuff. So he won’t lose them.

Side note: We got each one of them tackle boxes Joshua and Ariel are using them for their Lego’s and Daniel is using his for his “electronic toys”, so they will not lose them.

Daniel: Lord of the Rings.
Me: I am not sure I can get something LOTR but I will try.

I ended up getting David a game that the family could play together.

I could not find anything LOTR that was not too expensive, besides the day before David received the LOTR Wii game. David and I talked about how each child processed their gift giving idea differently. Ariel and Daniel both made choices about gifts the way I do. I immediately think of a need or something that I know the person likes. The problem is that a lot of people do not want to receive gifts based on their needs. On the other hand people also do not want to have large quantities of things that they like. If I discover that someone likes something I tend to error in my thinking that they would like LARGE quantities of the particular thing.

Or that they would like to be all consumed by it.

All of us in this household want to consume as much information or things that are our interests and we assume others feel the same way. Fortunately, it works for us but unfortunately not so much with others. Sometimes it works out great though, I tend to always be the one with the “odd” gift while others are giving what seems frivolous silly gifts and some people find that refreshing.

As for Joshua he made a gift choice like David would.

He first thought of what he likes, then when he realized that David did not want Lego’s, he applied a principle that he had learned. David purchased an otoscope and a lighted ear wax remover, he has a stethoscope and other “doctor” things in case we need to check things at home to determine if we need to go to the doctor. Joshua thought of those things and realized that David had no place to keep them, just like his Lego’s. Since we told him that he could lose his Lego’s if we didn’t keep them in a storage box, he thought the same thing about regarding David’s stuff.

Kids are so fascinating.
Cake comparisons. I will spare you the years before. Why do I keep making cakes? I really don’t know. It’s become a challenge now. :-)


 

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02/5/11

I Found Them, Finally

I have been searching for several months for all of Daniel’s medical records and evaluations that I put in a “safe” place, that I would remember but I completely forgot. I have gone back and forth searching the entire house, garage, under the car, up on the roof everywhere except on top of my storage file box, hidden in my closet, with books and photo albums on top of them. Sometimes I really do not know what I am thinking when I put things in a “safe” place. I happened to find them the other day while looking for something else I put in a “safe” place.

I am so relieved to have found these papers, I also found some of the journals that I kept of Daniel.

I need these papers to go over and evaluate where he has improved and see what things we should focus on now. Daniel and Ariel are going to have their progress evaluations for school soon and I want to be prepared way ahead of time. I will need these evaluations for Daniel as we sit with the evaluating teacher for homeschool, so I was freaking out that I could not find them. Since I was now able to breathe about that and move on with my preparations, I decided to look through the journals and his first evaluation.

Here are some of the things I had written down:

9/30/07 Daniel had a rough day. He fought me all through breakfast. He got very upset at church and we had to take him outside, he was happier while outside. When we got home he began to throw things and get progressively angry. He got very angry with me during lunch. The rest of the day the same. He can’t talk so I am not sure what upset him. I believe it was some sort of sensory issue but I cannot determine what it was. Pay closer attention next time.

10/05/07 I woke Daniel up today. He sat in the same room with Ariel and Joshua all day. He seemed very happy today. He got fussy at mealtimes but he did touch my arm and legs while I fed him. He had a good day, but was unable to go to sleep, finally fell asleep around 1am. It was a nice day.

10/06/07 Daniel peed all over himself in his sleep and woke up very angry. He got upset with me, Ariel, and Joshua, I am not sure why. He had a bottle in his mouth all day, whenever I tried to take it from him he would get aggressive and scream.

10/07/07 Daniel had a great day. I put on music and we all danced together for quite a while. He had a hard time during meals. Later in the day he sat in his room playing with his gears and a music mirror toys. He was able to go to sleep.

As I went through, there were so many days that I had written that he was in his room alone, he was angry, he was doing self harm, he threw things at me, he got angry at his food. He went through a period of time when he was doing “poo art”all over his bedroom, Ariel’s bedroom and the hallway. We had to feed him nothing but mushy food, covered in cottage cheese or something white. He would only eat white foods. We were not gluten-free at this time and pretty much year after year I have written down something about Daniel being upset during and after meal times. That has changed since we changed our diet.

I have this entry as a general observation 10/21/07:

Daniel mainly plays alone with particular toys, they usually play music or make noise. He is fixated to the point of obsession with ceiling fans and spinning toys. He will turn on every ceiling fan in the house and if we do not have them on he will become very upset.  When we have gone to people’s houses the first thing he does is turn on their ceiling fans and watch them and try to play the on/off game.

He beats on things repeatedly. He makes a game of turning the ceiling fan on/off and then beating on something as it spins from faster to slower. He also does this with turning lights on/off.

He loves music, especially heavy drums. He dances all the time, rocking back and forth.

He will not feed himself or drink from a cup.

He will not eat anything hard or crunchy.

He will not put anything in his mouth, just started to touch mouth with fingers.

11/2007

Does not hug or kiss

Avoids touching certain textures, foods, liquids on the table.

He has a toy or bottle at all times.

Stands still or moves against the traffic in group activities.

Shows little or no reaction to pain.

Shows behavior that seems difficult when its a response to tactile stimuli.

Those were for sensory issues I assume.

I did not label my entries with a title for certain list entries,  I wish I would have done that. He received a label from the OT “Motor Disturbance and Developmental Delay” on January 15, 2008. “Currently Fine Motor Skills, using the HELP, are at the developmental level of : ~24 month old. Daniel was 3 yrs old and 2 months during this evaluation.  Patient’s fine motor delays are partially due to poor attention to task and tactile sensitivities”. She also had a three paragraph description of his sensory issues. His gross motor skills were considered “fair”. After looking at the short-term goals and long-term goals for that year, I am happy that he has achieved them all and beyond.

We did not get to go back for formal progressive evaluations because of our insurance problems.

I did see his OT last year at an autism symposium and most likely will see her this year. She told me to come see her unofficially so she can see for herself how Daniel is doing. I think I will have to plan that, she is an amazing woman and I am so glad that we got her from the beginning. In my post  A Thankful Year I say that I am thankful for learning about the autism spectrum. Many people could misunderstand what I mean by that. I am not thankful for the hard things that Daniel had and does go through, the struggles that Daniel has, my personal struggles and facing my denial and confusion about all of it.

I am thankful that I have information.

I am thankful that there are so many resources and people who have already gone through life learning lessons with autism. I thankful that I can learn, grow, discover ways to help Daniel and the rest of us be able to live in this world better. I am thankful that the knowledge has given me awareness and understanding. I am thankful that I understand about how other people’s experience with autism is different and I can learn something from them or possibly help them understand it differently too.

Daniel has not miraculously stopped everything and now our life is great.

In the past two years Daniel has gotten progressively more verbal and that has changed our world. In the past 6 months his language has increased tremendously and that has made it possible for us to know what Daniel needs, wants, is happy about or angry about. When he is upset he does shut down at times but he is trying to talk when he can tell us. At times I just have to let him go and then go back and try to find a way to help. In Nov. 2009 Daniel was still drinking from a bottle and would not take it out all day except or meals. I wrote about that here The Bottle-My Nemesis!.

Getting rid of the bottle helped him find his voice.

There are just too many things to write about and at times I am too close to see the progress that Daniel has made. When I write about some of these things it helps me to step back and take a big picture look to see everything that is going on. I tend to be happy for a moment at his accomplishments but then jump right to the next thing that we should work on. Finding these papers will help me put things in perspective and actually help me see with clarity. I can’t wait for the day that Daniel can read all of this stuff and see all that he did.

I hope it gives him a sense of accomplishment and understanding that he doesn’t do things the way others do and that he doesn’t have to.

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12/19/10

The Cheese Experiment

I have been going around and around in my thinking about Daniel having such a hard time with cheese. I wrote about what happened when I gave him cheese in this post No Cheese! . It just doesn’t make sense to me that he can eat some things like yogurt and macaroni and cheese but cannot eat cheese. I had to go looking into it to see if I was just making things up and of course there will be experiments on Daniel with different foods because there is no other way for us to know what is going on. I don’t want to but we have no choice. He is repeatedly asking for cheese and doesn’t understand why he can’t have it. I am torn because I want to give it to him since he has never eaten it for me before, it is a new texture and feel in his mouth, that is a good thing. I have searched the soy and rice cheeses and they too have milk protein (casein) in them.

I found an almond cheese but it was crazy $5.00 for a small block!

What if he doesn’t like it? It may seem like it would be worth it to try but seriously I cannot be alright with spending $5 on a block of fake cheese that he may or may not like and I know darn well the rest of us will not so it will go to waste. I did find a recipe to make your own gluten-free, casein-free cheese. I may try it, it is made with hemp milk and tahini. I was thinking that I was crazy about this but just this week twice in a row, I used more milk in our dinner than I usually do. I got so extremely ill that I wasn’t sure what to do. The only difference was that I had more milk in my diet than usual. We didn’t change brands, I didn’t have anything else different in my diet except for the amount of milk. I find this odd because I can eat cheese. I cannot eat a lot of cheese because I get ill with that as well.

Maybe he just has a low tolerance and I gave him too much cheese the other day.

I do know that in order to find out what it really is we have to try to give it to him again. We will have to do low doses and take it from there. The week that he had the problem with the cheese, he ate cottage cheese and block cheese. It could have been just too large of quantities for his body to digest. I do know he cannot drink milk, that always makes him sick. I find this whole thing just odd. He isn’t allergic to it, he was tested for that but he obviously has an intolerance.

After the holidays and after things settle down, we will start our cheese experiment.

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09/16/09

Some More Books

There are so many books I have read and there are so many out there on homeschooling, gluten-free diet, healthy eating, Asperger’s and sensory integration. I have put links to several throughout my different blog posts but I felt these too were great resources to have and share with you. I put the Amazon links to them because you can look inside and check them out. We usually purchase ours used unless we are unable to find it used.

Asperger’s

Asperger Syndrome and Sensory Issues: Practical Solutions for Making Sense of the World

http://www.amazon.com/Asperger-Syndrome-Sensory-Issues-Practical/dp/0967251478/ref=sr_1_2?ie=UTF8&s=books&qid=1253138340&sr=8-2

1001 Great Ideas for Teaching and Raising Children with Autism Spectrum Disorders

http://www.amazon.com/Teaching-Raising-Children-Spectrum-Disorders/dp/1932565191/ref=sr_1_2?ie=UTF8&s=books&qid=1253135599&sr=8-2

Asperger Syndrome And Difficult Moments: Practical Solutions For Tantrums, Rage And Meltdowns

http://www.amazon.com/Asperger-Syndrome-Difficult-Moments-Practical/dp/1931282706/ref=sr_1_1?ie=UTF8&s=books&qid=1253135666&sr=1-1

Sensory Integration

Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Integration Issues

http://www.amazon.com/Raising-Sensory-Smart-Child-Integration/dp/014303488X/ref=sr_1_2?ie=UTF8&s=books&qid=1253135750&sr=1-2

The Out-of-Sync Child Has Fun, Revised Edition: Activities for Kids with Sensory Processing Disorder

http://www.amazon.com/Out-Sync-Child-Has-Revised/dp/0399532714/ref=sr_1_2?ie=UTF8&s=books&qid=1253135811&sr=1-2

The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder, Revised Edition

http://www.amazon.com/Out-Sync-Child-Recognizing-Processing/dp/0399531653/ref=sr_1_1?ie=UTF8&s=books&qid=1253135811&sr=1-1

Nutrition/Gluten-free

I only have a cookbook all the other books I read on gluten free were from the library. Here are a few great links.

http://www.gfcf.com/

http://www.mayoclinic.com/health/gluten-free-diet/DG00063

http://www.celiac.com/

Even if you don’t have celiac disease these are good sites with a lot of info.

Gluten-Free Cooking For Dummies (For Dummies (Cooking))

http://www.amazon.com/Gluten-Free-Cooking-Dummies/dp/0470178108/ref=sr_1_1?ie=UTF8&s=books&qid=1253136454&sr=1-1

The Family Nutrition Book: Everything You Need to Know About Feeding Your Children - From Birth through Adolescence

http://www.amazon.com/Family-Nutrition-Book-Everything-Adolescence/dp/B000EHSMKE/ref=sr_1_1?ie=UTF8&s=books&qid=1253136611&sr=1-1

Home school

Raising Bookworms: Getting Kids Reading for Pleasure and Empowerment

http://www.amazon.com/Raising-Bookworms-Getting-Pleasure-Empowerment/dp/098158330X/ref=sr_1_1?ie=UTF8&s=books&qid=1253136698&sr=1-1

Math & Science for Young Children

http://www.amazon.com/Science-Young-Children-Rosalind-Charlesworth/dp/1428375864/ref=sr_1_1?ie=UTF8&s=books&qid=1253137371&sr=1-1

We got the Math & Science for Young Children used, we paid less than half I think we got it on half.com but I can’t remember.

Words Their Way: Word Study for Phonics, Vocabulary, and Spelling Instruction (4th Edition)

http://www.amazon.com/Words-Their-Way-Vocabulary-Instruction/dp/013223968X/ref=sr_1_1?ie=UTF8&s=books&qid=1253136866&sr=1-1

We got this one used too.

There is no need to buy every book on the market but David and I both have “special interests” (ie. obsession) in teaching our children and anything to do with AS. The best thing to do is check out different books and resources and see which ones best suit you. Every person has a different journey, each AS person and child is different and no one should ever feel obligated to do what other people do. Always seek out things and resources that fit your personality and ways that you learn and teach. Be yourself even when trying to find answers. Onward on our journey!


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