01/11/11

Autism & Church: I’ve Been Waiting For This

In the last two days Lynne Soraya who writes Asperger’s Diary on Psychology Today, has brought up the question about autism and the church. Her question was regarding if the church has been accepting of autism, helpful, what are people’s experiences etc… For us this has been a mixed bag. At the church before this one, it was a very negative experience, though they never directly made it difficult for us. The situation was more in terms as autism being something that God could heal and was caused by my sin, David’s sin, or a demonic being keeping Daniel trapped inside his own body. None of those seemed logical to David and myself and after a period of time we found their theology to be more harmful to us than helpful.

Despite the theological problems the other main issue derived from the lack of acceptance and wanting to understand our family.

In our current church they have been very accepting and helpful in many areas, however there is still the lack of understanding and what feels like lack of interest to understand. This could totally be wrong in my thinking, I really do not know but it has the feel that in order for us to be involved we must change everything in our life to participate. We are just unable to do that. We want to be active participants in our church but some days we cannot leave our house. We are unable to communicate what we need because we do not know how. It is not because we are prideful, which we have been told by church leaders in the past, we honestly do not know what to say.

When someone says “If you need anything just let me know” I do not know how to respond to that, other than “thank you”.

With some people I am able to be quite clear in that we do not any help that they could offer, not in a rude way, it is a practical way. There is just nothing that they can do besides pray for us. At least from all of the scenarios I have gone through in my head. The issues that we have going to church are many, there is the social, the sensory, and the thinking issues that we have, each of us in our family. David and I both tend to pick apart the sermons and find all of the things we see as inconsistencies. We do not want to do this but it just happens. We have resorted to bringing things to work on, or I will take the scriptures from the bulletin and do my own study. We do this and try not to be openly rude about what we are doing. Actually, I see other people sleeping, playing games on their phones or listening to music so really we are not being that rude. Even though we try not to listen, we can’t help it and end up having a discussion on the way home, so I guess we are not being that rude to our pastor. He is a great guy and really tries to help people.

Let me focus.

Back to the Lynne Soraya topic, she put up several sites regarding Autism and Church and I was feeling so much hope about it. Though the resources are from a Christian point of view, I feel that the information is good for any belief system or social group. It would just need to be adjusted accordingly.The information is practical especially from this one Welcoming those with Austim and Asperger’s Syndrome in our Churches and Communities which is a guideline that has an Asperger’s and high functioning autism point of view as well which can be a voice for those who are unable to communicate. She put up several other resources that I thought were good, there were some moments and phrases that I had a problem with reading and some of the videos, but ultimately they are trying to do a good thing here and be inclusive and that is what my heart desires for communities whatever faith/belief or no faith for that matter.

I am sure whatever the things I had a problem with were semantics and my interpretation of what they said, that is why I am not even talking about it. :-)

Personally, I would like anyone’s input with this. I have been searching for almost three years trying to find information about autism and the church, autism and spirituality, if others have found it difficult to be in church for any reason and if so how do you cope? Do you even go to church or a place of worship and if you do not have a spiritual belief what do you do to socialize?

Here are the videos and some articles.

Making Sense of Autism: Part 1

Making Sense of Autism: Part 2

Is Your Church Open to Autism?

Bullying, Hypocrisy, and Church: An Asperger’s Perspective on Religion

Dealing with Autism, Lesson by Lesson, In a Quest for First Communion

Other articles that I got a lot out of.

Lessons from Gandhi

Is the Bible Obsolete?

The Spiritual Doorway in the Brain

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08/28/09

Obsession Thing Answered

I have been wanting to know for years why I would go into study frenzies of certain things, people and places. They were usually things that had some sort of dark imagery or association with it. I loved things like vampires, gargoyles, went into a Marilyn Monroe phase, loved and still love Edgar Allan Poe (who I was reading obsessively at the age of 9) and I used to watch horror movies and read horror novels like crazy.

Then there is always my serial killer thing.

Through the years my obsessions have changed off and on. I gave up my lovely vampires and gargoyles and traded them for God and religion. I don’t just like things I study things, I devour information. When I fell in love with vampires I didn’t just fill my house with vampire like items; I had every book I could find on them. I talked about them as if they were real. I began to believe in them. That is my pattern I have noticed and now have read about with Aspie’s. For the past 11 years I have traded my vampires and other goth loves in for God and religion.

I had an experience with who I feel was Jesus and that set me on a quest for truth.

I had to find out who this Jesus was. I got tons of books researched the Internet high and low. I researched the Bible to find out what that was all about. I was doing pretty well at adding things up and finding the info I was looking for until I started going to church and that messed me all up. Then I was getting exposed to all kinds of inconsistencies and people who lived lives very confusing to me. I had already hit the shelves of Barnes and Noble and Borders which drove me to questions that led me to the Christian bookstores. I started going to the Christian book stores which opened a whole new world of reading. What I found were a whole lot of different beliefs, ideas, theologies under one roof and I needed to know them all.

So began the enormous library I have now from Christian authors and theologians.

My book shelves are also filled with about 10 different translations of the Bible, Greek and Hebrew Lexicon, Bible dictionary’s, books on how the church was started, how the Bible was organized and put together and on and on. Many a books I have devoured to try to understand the faith I claim to hold. The problem is it is not black and white. I cannot have a simple answer. I find out one thing that makes me go into a whole line of questioning and it continues with no end.

I have to stop myself.

I have done this with people in my life as well. Sometimes that is not so good. I have been trying and trying to let the whole church thing go. I have tried not to be angry and obsess about people who are on TV and online everywhere acting all crazy and robbing people. I try not to obsess about the experiences I have had with people being horrible to me and others in the church. I have tried to just let it go when I have seen leaders who claim to love and then destroy the lives of others, it infuriates me. Those people who claim they know who God is and they are closer to Him really sets me on a tangent.  All of the inconsistencies, hypocrisy, lies, manipulation and fear driven agendas make me very confused and upset. I always have to pull myself out of the obsession and remind myself that not every person in church is like that. Sometimes it is very hard.

These things have almost made me mad but I think I found my resolve.

I was wanting an answer for my behaviour so through my strange way of reasoning I came to search for “serial killer obsession Aspie’s”. I found a great article that answered a lot of my questions. It also made me feel better about how I think. I do study , research and dissect as much information as I can when I do not understand something. I also do it when I love something. I do not just do it with things some people consider dark or wrong. I have done it with home schooling, dancing, working out, diet, music and the lives of people who intrigue me. The many great writers, musicians, scientists and artists.

If you have made it through this post here is the link to the article that helped me understand my obsession thing.

http://www.psychologytoday.com/blog/aspergers-diary/200901/interest-in-serial-killers



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