Tag Archives: ASD

MindRetrofit Celebrates: 1000 Ausome Things #AutismPositivity2013

Woot! It’s here! 1000 Ausome Things #AutismPositivity2013! A great day of celebration and basking in the awesomeness of Autism. :-)


Last year I contributed to the flash blog  To “I Wish I Didn’t Have Asperger’s” #AutismPositivity2012 Flash Blog.

I remember feeling struck with heartbreak when I discovered that someone had put those words into a search engine. In my post, I shared some of the awesome things about Autism. I was excited to see what would happen this year’s flash blog. I was delighted to see that this year we were focusing on “1000 Ausome Things!” (Yes, I am using too many exclamation marks in this post because I am over-the-top excited, especially after reading so many of the positives that are rushing the internet.

However, my mind is in a spin and I am having a difficult time trying to articulate what I want to.

Because I enjoy words so much and one of my gifts is using them on multiple levels I am going to take the “Ausome” word for a moment and share with you what I am in “Awe” of in regards to Autism. I use the word in the terms “of an overwhelming feeling of reverence, admiration.” The first part that I share is about my son who is Autistic. There have been so many moments that Daniel has made me awestruck. He filled my mind with wonderment and excitement by his actions and/or questions. The way that his heart feels and how he sees joy in the most simple of things, such as a screwdriver. Who knew that a screwdriver could be such an entertaining toy! It does everything, from spinning to opening up clock radios. It can be used to write words in putty and for some great magnet experiments.

Daniel asks questions that stump me and I love that. 

Only yesterday, without any indication that he has been thinking of this he looked at me and asked, “How can God hear us and we hear him if he is not here?” Good question. I did not want to get into a theological discussion with my eight year-old because he can dismantle my logic in seconds. However, I had to try. I could tell that he really needed some sort of resolution to the question. In my feeble attempt, I told him that God is like a spirit that lives within our hearts and that many times God does not speak to us directly, but through people, situations, or actions. He sat there staring, processing for several minutes. Then asked, “How can God fit into our hearts?”

Good point. 

I tried my best to explain that he does not live in our heart like a little person, but that he is like air, in nature, in every part of being. That led to him asking, “Do we breathe God?” I had no good words other than, “I guess that would be a way to think of it.” I was in no mind frame to have the discussion. :-)  However, it made me think of all the times that Daniel has asked such questions. How do things work? Why do they work like that? Can we take it apart? Can we look at it on the internet? He wants to know every single detail and looks at the small things to connect the big things. His thoughts intrigue and amaze me. His kind spirit and deep emotions move me.

His laughter fills me with joy to the point that even now I have a little bit of tears filling my eyes. 

He sees the world in music; he lives in this world in constant curiosity. (Much like his mother.) He stims in drumbeats and claps. He hums any tune he hears in an instant. He delights and squeals when he gets his favorite food. His enthusiasm is contagious on some days. Yes, those are some grand marvelous (Awe) “Ausome” things that I get to enjoy. I am ever challenged, but the type of parent that I am I think that is Ausome! Those are a few great things about my little boy. This second half, I am not really sure where I am going.

Let us see …

The first thing that comes to mind is that October 2012 I was “officially” diagnosed as an Aspergers adult. I had a lot to process – I still do. I found that finally having answers and a community that I could actually relate to made my soul feel a little more whole. What I have I found is many people who are caring, kind, open, honest, and understanding. These are many of my Autistic peers. They are some of the most talented and articulate people I have encountered. They share their lives openly (as much as you can on the web. :-)) I cherish all that they give and the many ways that they have helped me to understand my mom (an Aspergers adult), my son, and myself.

I have found parents who are just as compassionate and caring as well.

They work hard at being advocates and I am amazed at all their efforts. They shine of positivity. There are some days when I feel a bit down and unsure about many things, but I have been able to bounce back much sooner because of all the “Ausome” words that our community pours into the internet waves. I have a better self-image because of all the positives that my peers and our advocates share. Being able to find answers, relate to other’s stories, and share my own stories knowing that others will understand has boosted my self-esteem. I am able to see positives about myself that I could not see before. The voices that are out there sharing and focusing on the good have helped spring board me in many ways to much soul searching and healing.

To me that is HUGE “Autism Ausomeness!”

I believe that the foundation is being laid for my son. (And for my other two children.) My kids will see their “quirks and oddities” their “stims and unique ways of thinking and processing” as Ausome! They will see a mom who (finally) sees and accepts her own talents and gifts. As well as someone who does not think of being Autistic as a negative, but who embraces it and seeks to help others to see the positives too. I admit it can be a challenge, but that is why we need more people to build us up and focus on our positives. We thrive when people acknowledge, accept, and point out the good things about us.

Ending with a short list.

  1. We see the world in unique and interesting ways.
  2. We have great abilities to seek out and dissect details.
  3. We are artists in whatever talents we have whether through poetry, painting, creating images, or in how we can write and share our ideas about math, science, animals or computers. (Obviously, a very limited list I shared here.)
  4. We can keep our childlikeness that can be a very good for stressful situations.
  5. We have some pretty entertaining (ingenious) thoughts and perspectives.
  6. We can be some of the most loyal and best friends you could ever ask for.

I will stop at six, it is a good number. (And some of us may see numbers dance and leap about in wonderful colors!) 

Oh, and words here are some of my dancing colorful words leaping about through poetry! Happy Ausome Day!


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1000 Ausome Things #AutismPositivity2013 Flashblog Announcement (Reblog)

 1000 Ausome Things #AutismPositivity2013 Flashblog Announcement

We know you have been waiting… and we have been working and organizing behind the scenes. Now we are ready and we are excited to announce the theme for the second annual Autism Positivity Flashblog Postivity Flashblog Event on April 30th, 2013: “1000 Ausome Things #AutismPositivity2013″


Last year hundreds of bloggers came together in a show of support and solidarity in response to an anonymous person’s Google search “I wish I didn’t have Aspergers”. The posts that came flooding in from all over the world were a beautiful example of the power of strength in numbers. With so much negativity still surrounding Autism and the misinformation and misconceptions that continue to abound, we invite each of you to share one, or two, or more “Ausome” things!

We invite all of you, anyone who is Autistic, anyone who has an Autistic person in their life and all who blog about autism to share a message of support, wisdom, hope, and pride to this year’s flashblog by posting tohttps://docs.google.com/spreadsheet/viewform?formkey=dDdPQjAxV244VjdCcXdYX0pPQ0RBblE6MQ

Please join with us on the last day of Autism Acceptance Month – April 30th, 2013 – in a Flash Blog of Autism Positivity.

To participate:

1. Publish your post on April 30th in the following title format: “ [Your Blog] celebrates 1000 Ausome Things #AutismPositivity2013″

2. Share your post on Twitter, Facebook, and any other social media site using that hashtag (#AutismPositivity2013)

3. Add your link to the Autism Positivity website (submit here or above) and grab the badge from the page tab above.

4. Share/reblog this message to your blog, page, etc.


Thank you,

The Autism Positivity Project Flashblog Team, 2013

If you have any questions, please contact us at autismpositivity@gmail.com

We can also be found on


Pinterest: http://pinterest.com/positivityautie/autism-positivity-2012/

Tumblr: http://autismpositivity.tumblr.com/

Twitter: @PositivityAutie

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Rainbows And Coincidence?

This morning I had a story flooding my mind. I loved writing the story because I felt like I had literally jumped into that world. The story had rainbows involved, ironically the sky filled with rainbows (technically circumhorizontal arc) today. It was bright and sunny, not a raincloud in the sky. It seemed as though the very story I had written came to life for me. I did not tell the kids about the story, but they shared in the excitement of the rainbows in the sky. What made it even more amusing was that the rainbow would go and then show up again, smaller and in different parts of the sky. We saw them at my mom’s house and by the time we left they were gone.

When we arrived home there was a small rainbow right above our house.

Ariel said: “Mom! The rainbow followed you, but a rainbow can’t follow you. A rainbow stays in one place, but it came back to you.” I love that girl! (I know that is silly to say, of course I love her) She says some of the best things. There were other things that happened too, like I wrote a poem that said: “I forgot how to smell the roses, maybe they didn’t really bloom.” with a picture that had roses in it, I almost never speak of roses. When I arrived at my mom’s house she said: “Hey, look at my roses! They all bloomed.” I went outside and smelled the roses. The moon has been peering and peaking in my windows all night and all morning this week. And the ocean had a world of words for me the other day. There were other things like specific words, or numbers that kept popping up. All of them mean something to me and help subdue my doubts or anxiety.

I share all of this because I have been doubtful and feeling anxiety creep up on me.

Whenever that happens things like what I shared happen. They have always happened, but there have been pivotal times in my life where I am required to hold on to patience and keep hope alive and I SO want to give up. David says it’s like being in Alice in Wonderland, he feels as if it is “David in Angel’s world”. There have been so many times that it seems to have no explanation, whether it is a sixth sense, God, or coincidence, it happens A LOT. I am surprised every time it happens and David has been telling me for weeks now: “That is your world just accept it, for whatever reason that is how it is for you.” I find it hard to accept because I have had so many people not believe me or not respond. I usually read the “silence” response in a wrong way, somehow turn it around as a negative on my part, instead of thinking possibly they just don’t know how to respond. Or some other reason for their silence.

I do not go seeking these things they pop up, they happen.

I do not find things the way that others do, I have to go through various routes that seem long and at times too lengthy a process. The reason is that I need to see it for myself, I need to learn it or own it myself. I need to know that I found it my way and connected it to my world to make it real. An example is a time that I found a song, I normally do not seek out suggestions given to me by iTunes or Amazon, but one day I decided to go to a sampler LP, when I saw all of the artists one popped out at me and I went straight to that song. When I listened to the song I laughed so hard because in the song it mentioned baby teeth in a jewelry box. Days earlier I had written about how I still had some of my baby teeth, guess what? They are in a small jewelry box. I felt anxious about sharing that on my blog, I feared people would think of me as a freak.

I found comfort when I heard the song, and the band turned out to have several great albums too.

Their songs actually opened some creativity in me that got me searching for other things, and connected some emotions I was feeling as well. Maybe that is not a big deal to people, but it is to me. It makes things have much more meaning and purpose. They are details that keep my world exciting and open to the imagination. It makes me not get sucked into the mundane or hard things in life. It keeps hope alive about seeing something new every day, it reminds me that I should never limit things to only the expected, and that whether it’s real or just coincidence those moments make you stop and think, “what if” in a positive way. Although I will say that on some days I feel like the universe is really messing with me! Or my imagination came to life on its own. :-)

What is possible, having no imagination takes that question away.

I am sharing some pictures. There is a painting that my mom did, she has never painted anything like it before, she normally does landscapes. It is not finished, it is actually for tomorrow’s church service, she is painting during worship time. I loved it and I have requested that she makes me one with Mars, the moon, or planets, I must have it! It spoke to my heart and was confirming for me, but I will not go into that. My mom’s camera leaves a weird dot in the pictures, Lisa at Alienhippy said it was her time machine. Lol! Maybe it is…I didn’t listen to my gut today when I heard “take your camera” I am thankful mom’s was working. :-) You have to click on some of the pictures to really see the small rainbow colors shining through and the birds flying.

 Happy moon and rainbow dances to you!




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