03/14/12

Pi Day!

Yesterday I didn’t give the date any thought. I was busily cleaning and organizing Ariel’s room. We had a very light day for school because my anxiety filled with both excitement and stress were at high levels. The kids were filled with the same feelings because everyone had lingering in the back of their minds that I would be gone all day today. My thoughts were cloudy, silly, and racing. Thankfully, it was gorgeous outside and the kids got much needed running and playing out of their system. My mind started to focus on the silliest of things. I was in such an off frame of mind I started sharing my silliness on facebook. Then had a moment of panic that I shared then calmed down and redirected my energy.

My efforts went straight to numbers.

I started looking at some of my images I have tucked away on here. I went back to the image that I have up for one of my poems that I could stare at all day. When I first saw it made me think of flexure. That is actually the name of the poem. The image led to me thinking of curves, that led to thinking about swimming in the number 8, leading to backstroking into infinity, pulling my thoughts to materials that stretch and bend, discovering topology. From there I went on a quick journey of reading and researching many thoughts that ultimately ended with me thinking of Pi and writing a poem about it in a fun and whimsical way.

The way I see numbers. :-) Irrational Number

I just let you have a teeny taste of what happens in my mind during a 15-minute snack break around here. The good thing about anxiety is I have incredible focus on my special interests when it hits me. I am able to write poems very quickly. I can research something in record time. I have the ability to direct great amount of energy on something and get it done — this only works for my special interests. If I am asked to do something else during a spout of anxiety induced adrenaline rush, I cannot focus. My mind turns to fuzz, I begin to sweat, my heart races, I feel panicky, and it takes twice as long to get it done. If I am able to get it done at all. I have learned that when I am feeling this I need to let myself loop into my special interest. I have learned not to be sucked in for hours or lose time…most of the time.

It is much better for all of us when I allow my mind to seek comfort and stim.

I am going to the autism symposium that I have gone to the past two years today. The first year I ended up lost, in a meltdown, sobbing, and forcing myself to go inside. It ended fine it was the getting there that was awful and the effects of the panic, meltdown, and sensory that took me days to recover from. Last year I was so panicky that David had to go with me and that caused other forms of anxiety. This year I was feeling anxious and I am a little now, but it is not the same. I have taken extra measures to help me calm down and I am better equipped in what I need to do for myself. I did not have that last year or the year before. I was still condemning myself for not being able to be a “normal” person who can go to a symposium without a complete meltdown.

The negative talk has stopped.

I will feel comfort and peace with my little iShuffle. I will try to be as calm as possible leaving the kids with David all day. I will make sure that I have the cell phone on me. I will look over my directions another 50 times, even though I know how to get there. I will try to direct all the other thoughts bouncing around in my head on my excitement of what I will learn today. All of this meshing up in my head made me not realize the date. When I wrote my poem last night, I did not consciously realize that today was Pi Day. I usually use this day to teach the kids some cool things. We will do it tomorrow — if we are up to it with all the change from today. I thought it was funny when David said something about it being Pi day. He was surprised that I had not been talking about it all day. I was all: “What? Oh, Yea, Wednesday is Pi day. And I wrote a poem about Pi.” Hee hee

So Happy Pi Day I hope you have a great day!!

 

Piday.org

exploratorium.edu

teachpi.org

Mathematical Pi Song

Pi song 2

inmath.com

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03/13/12

The Art Of Being Wrong

I believe most parents have certain things they want to instill into their children while raising them. We may want them to take on our passions for sports, art, music, learning, obsessing about the number 8, monkeys, reading, becoming a cyborg, I don’t know maybe some of those things.  I have not personally sat down and said I want to teach my kids “Blank”. It has naturally manifested through me. I later realize that they are things that are important to me and I am sharing them with the kids. I try to connect my interests to theirs so we can all relate to one another somehow. If I do not make a conscious effort to do so, I can seem very detached. I try to make sure that I interact in the things they like. I do this purposely because I felt so misunderstood as a child and adult by having people not interested in the things that I was passionate about. Or at least not as showing the same passion.

The other day I reread the first chapter of The Curiosity Cycle by Jonathan Mugan.

While this book is geared toward parents teaching their children — I think, parents (any adults really) should hold to a curiosity mindset as well. We should always be curious and wonder. The way that he describes the curiosity cycle is how my brain naturally works. He describes this learning process in terms of connecting and linking things together called a “web of knowledge”. If you read around the blogosphere or books about people on the autism spectrum, you will see many similarities in what he describes as a beneficial learning process. I have tried to describe my way of thinking in many terms, but the most accurate I think is regarding the show Connections. I am always connecting what I learn, or experience. My mind gathers data and links, processes, and then I apply it to my daily life. It also stirs past memories, and triggers new interests at the same time. That is as simple as I can explain it. (Side note: Here is a quick review about the book on Geek Mom.)

I’ve noticed that the kids absorb many concepts when I use multiple connections.

They have a natural tendency for this, but when it is cultivated, I see them take off in many awesome directions on their own. Daniel is starting to do this as well. I believe he has done this all along — it is only now that he is more verbal and learning to share it with us. He is doing more interactive pretend play and sharing his imagination/thoughts. The kids use of Lego’s blows me away some days. Lego’s are not just for building. They are for creating amazing adventure stories, recreating every single Star War scene there is, reliving Lord of The Rings, Bible stories, Billy Goat’s Gruff, and Romeo and Juliet. They are used for adding and subtracting, learning fractions, and creating symmetry. They can become robots or race cars! These blocks are not just stackable shapes that cause nerve-shattering pain when you step on them — they are alive and become hex bugs too! (Ones that do not use batteries and do not overload one little child who is fixated on hex bugs. :-) ) Not only do these great perfectly shaped pieces make wonderful towers they are also grand works of art or tantalizing imagination triggers.

What if someone told our kids that this line of thinking was wrong?

What if someone said: “No! You can only build square houses and horizontal towers?” Would we think of them as foolish? Well I definitely would! I ask what is the difference when we tell a child that they are wrong when they see their world with different colors? If we say to them they are wrong because they learn how to do math differently? We tell them they are of no use because they cannot write with perfect penmanship? They are rejected or made fun of because they stumble when they read aloud, or can only read aloud to understand what they read?

Who laid claim on the authority over our minds of how we learn?

Who decided for us that their way was the only right way? AND who continued to say that it was a bad thing to be wrong? My connections have been making their rounds recently as I have been thinking about my childhood. I have been combing over my fear of being wrong. I have thought about why it has been so debilitating at times to discover that I was wrong about something. I am usually fine if I have had a misconception (Though not always at times this has caused meltdowns as well.) about something, but if I feel like I messed up — it is a big fat FAIL! (Meaning, I had all the data in front of me and I still made the wrong decision or choice. FAIL!)

My mind gets filled with fear and panic and I feel so foolish and embarrassed.

I do not know when this set in exactly, but after watching this video on TED Kathryn Schulz: On being wrong, I think some of the root to my fears were stemmed from many bad experiences in grade school. (I will not talk about family today. I have covered that ground quite a bit and it plays right into this as well.) It paved the way for me to see myself as wrong. I did poorly in school for many reasons. I think this may have caused my own self-doubt about my intelligence. My self-doubt that was to be reinforced by people who constantly put me down, or glossed over any of my achievements. In school, I was always in trouble for fidgeting, talking, not focusing, talking back, being a goof ball, or hanging upside in my seat. The teachers expressed to me that I was wrong and told me so, often. I felt wrong and unable to achieve in academics, as well as socially. I adopted a right and wrong mindset — I am already prone to that. Since I had such different ways of learning I could not pull out the straight A’s — instead I became class clown and “bad” girl. That is what my teachers and classmates labeled me.

I assumed my role and felt everyone else must be right because they are the authority.

I wasn’t really bad, I had strange interests and talked about odd things. The label came from me talking to teachers as if they were my equals. I thought we were all reasonable thinking people who could discuss matters that any child was concerned about, right? The acceptance of authority being right all the time must have come from me getting reprimanded about my attitude. At some point I gave up. This TED talk was very good for me. She explained being wrong as being our life story. I was able to see and accept how great it has been for me to be wrong. It put in perspective what being wrong about something actually means. This year alone has been the most awesome mind changing experience for me and it all started with me realizing how wrong I have been about myself. This fear of being wrong seems to have always been there. I have felt (feel) great anxiety about being wrong. I know that I have read about other Aspie’s who have had great fear of being wrong also.

Thinking about it that is a whole post on its own.

In the talk she also shares about our attachment to rightness. Her statement that caught me with great enthusiasm was “This attachment to our own rightness keeps us from preventing mistakes that we absolutely need to and causes us to treat each other terribly.” That is a great statement to ponder and to use as a learning tool for my kids. I know personally my strict past religious beliefs caused me to lose friends, and be very judgmental toward others. I remember feeling so wrong for my judgmental thoughts, but everyone around me was set in this “rightness”. I would bring up my concerns and would be quickly put in my place. I felt because I have always been wrong and I wasn’t an authority then, I must be wrong again.

Until one day, their “rightness” became too wrong for me anymore. 

I questioned my decisions and choices since then, and have gone through several years of feeling afraid of the “What if I’m wrong now?” thoughts. I have continued to do this right up to this very moment. However, this talk helped me in droves because I see that the very act of not accepting wrongness is wrong. I see how claiming absolute rightness fused me with anxiety because I knew (know) I could not achieve it. No person can ever be absolutely right, but for some reason in group think that perception seems to trump all doubt. It can make us unteachable, unloving, and unable to accept others for whom they are. I do not fit in well with groups who are not into loving diversity and uniqueness.

Period.

At this moment I accept that about myself. This “wrongness” mindset also applies to learning about any given topic. Once we think we have all the answers someone is going to come along and show that we do not! The fears that flood my mind at this very moment of thinking what if I used the wrong word, spelled something wrong, said something inconsistent, change my mind later and then have this post lingering up on the internet forever? Aaaahhhhh!!! My wrongness will be ever printed into the internet webs spreading out into quantum leaps and bouncing around parallel universes!! AND what if there ARE other life forms out there? What will they think of me using the incorrect homophone?

What a waste of time!

I have decided that the best thing I can do is teach my kids that being wrong is right. It is good. It will be ok. It can be a positive thing to get something wrong. It means that we are teachable and understand that being wrong is embraceable. Yes, we need to be wise when dealing with people and social dynamics. I still think that it is good to understand that we can be wrong about people. I am mostly referring to learning, and accepting that we cannot know everything. It is part of self-acceptance and letting go of the perfectionism that can hinder our lives. What is it that causes such fear about being wrong? There is a lot tied into this for me. I need to think about it more. I do know that I have been told that I was wrong for the way I think, or do things. I have been made to feel ignorant for asking questions. I would be reprimanded for pointing out things and was supposed to understand that it frustrated others. I wish I could say this only happened while I was a youth, but it has happened well into my adult life. What I want to know is why the heck did I care what those people said? Why did I take their words and believe them?

What made me consider them a superior over me or how I do things?

I don’t know that I will spend much time on those questions. (I recommend watching this one too Kathryn Schulz: Don’t regret regret) The point now is that I see it and to be quite honest I enjoy all of the learning and new freedom that I have found by seeing my wrongness. I am SO wrong and it feels SOOOOO right! :-) Being able to accept that it’s ok to be wrong, has opened my eyes to seeing many things that I would not have otherwise. It has also opened my heart to be more accepting toward others. Oh, I by no means have arrived in my state of wrongness. This is going to be an art form that needs to be cultivated for a lifetime, but at least I can stop my panic attacks sooner. Possibly talk myself out of anxiety-ridden loops for days.

It’s important to me that my kids will see being wrong as a good thing not something to fear.

I will leave with some quotes from the book I mentioned above. Personally I think these quotes can apply to us adults as well. Another thing that I think plays a key component here is acknowledging that we as parents and grown-ups can and are wrong. I want my kids to know I am human, not an authority figure that demands their respect. I don’t want them to accept all that David or I say as ultimate truth. Talk about leading to disillusionment as a teen. Yes, yes there is balance needed, but it’s ok to be a wrong parent…sometimes. Zoinks! Some of our biggest meltdowns that have occurred in this house (me and the kids) is when we discovered that we were wrong. It was devastating. This post is a teaching lesson for me so I can help my kids to be happy risk takers and not be ridden with self-doubt, or anxiety about being wrong. I think that can happen with having a healthy balanced attitude about being wrong. I really wish someone would have taught me this stuff as a child.

At least I know now. 

Once children learn one thing, they can use that idea in components to learn other things.

Your child doesn’t need a perfect model just one that can be defined later. An incomplete model or even an incorrect model is better than no model, because once you have formed a hypothesis, then you can test it. But without these fragments to test, you have nothing.

When it comes to decisions, it is important to know that your model may not always be correct and to take that into account. But when it comes to learning, and incorrect model can be a useful start.

{learning a little about something, a little goes a long way}

We have a tendency to avoid learning only a little about a topic, maybe because it makes us feel ignorant.

Children must always be aware that some of what they know could be wrong — probably is. 

– Jonathan Mugan, The Curiosity Cycle



 

 

 

 

 

 

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03/2/12

Holy Smokes!

This post has a lot of links! Alright I just wrote close to a 4500 word post without even realizing it. I don’t even want to try reading that right now. I have a pile of laundry and a mess of a house that I am escaping from, but I must go face…later :-) Instead of posting my long winded rant I will post this one. Everyone needs to see my musical pirate sock monkey anyway. I discovered an awesome interactive book app for the iPad that the kids love and I wanted to share it. I always plug new creative ways to add to our school curriculum. I watched this Shilo Shiv Suleman: Using tech to enable dreaming on TED the other day and thought it was great. We bought the app the next day. Here is the trailer for the app Khoya. The kids got so excited. They love the story even Daniel will sit through it and ask questions. He has hard time sitting and listening to stories unless they are short and to the point. It really gets their imaginations going. As I read it I connected other stories we have read, and movies to the tale. There are parallels between myths, the Bible stories they know, Lord of The Rings, and Star Wars.

Personally I love the story too.

The first chapter unfolds a creation story and I used that to talk about how different cultures have their own creation stories. I also reminded them of the Greek and Roman myths we had been reading. As well as talking about the Big Bang and what they thought about science, God, and myths. They have such awesome ways of thinking about the world and connecting all of these things together. They are really into Through the Wormhole  on the Science Channel and Wonders of The Universe  . They thought that the illustrations in Khoya looked as cool as space! Hee hee Fabulous. The story so far reminds me of a mix between myths, Anthem (Ayn Rand) and paralleling themes as in The Fountainhead (Ayn Rand) Gattaca, and Lord of the Rings. It is just a mixed bag of fun and fantasy. We are only on Chapter 4. The illustrations are beautiful.

I love having all of this for school!!!

Now that I think of it the book may have similar themes as Harry Potter and other fantasy books like that, but I have not read them so I do not know. Oh, I just read in the description of the app it says that it has a Harry Potter feel. Ha ha Since I am on the topic of books I thought I would share some of them that I am in the process of reading, still reading, rereading, and getting ready to read. I am still reading Daniel Tammet’s book Embracing the Wide Sky I wrote about that here. (Video links included) I had to put it down several times because it just gets me thinking too much. I want to go off on tangents and research a whole bunch of things. So I have to read it in small doses. I am rereading this one Introducing Fractals: A Graphic Guide. Love, love, love. I just started reading The Curiosity Cycle by Jonathan Mugan Very Interesting.

 

Here is an article that was pretty cool about it. Want to Prepare Your Kids for the Singularity? Read Jonathan Mugan’s The Curiosity Cycle (Singularity Hub is cool too.)

Welcome to Your Child’s Brain: How the Mind Grows from Conception to College

by Sandra, Ph.D. Aamodt, Sam, Ph.D. Wang and Ellen Galinsky

I am all about brains! Lol!

Little Big Minds by Marietta McCarty

And minds! Ha ha ha

The Particular Sadness of Lemon Cake by Aimee Bender

And sometimes cake when I get the sweet tooth, but I am always in the mood to bake one!

I love Aimee Bender’s writing and her website.

Asperger Syndrome in the Family Redefining Normal: Redefining Normal by Liane Holliday Willey

YES!! I skim through this book I have to pick chapters to read when I am in the right frame of mind otherwise it makes me want to write a whole bunch.

 

Ok, that is all I am up to. I have some photos I will share. Pirate Sock Monkey, Pikachu Invasion, Lego Mess Before/After, Clouds Division, Hex Bugs Yea!, I can’t remember the rest. :-)

P.S. I love March! It’s my favorite month. (My second favorite is April it always has been. I like the way the letters look together.)

Which reminds me of April March – Mon Petit Ami

 

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02/29/12

Facing A Fear With Help From Ada Lovelace

I love to read about people from the past. I drift into their worlds and escape into words written about them, but the true gem is to have their actual writings and read them. In my other worlds that I drift off to, they are filled with meeting these people from the past and asking them questions. :-) I discovered Ada Lovelace years ago, but I limited myself to reading too much about her because I felt too drawn to her. I did the same thing with John Keats. When I feel too drawn to people alive or dead I tend to stop myself from seeking information about them until I feel ready. I can get consumed and if I fall for them, forget it I am gone. I have learned to control this somewhat and I have found a nice balance. In the real world this may be considered “stalking”.

I am not a stalker in the scary sense. 

I am a stalker in an endearing wanting to learn everything about a person or thing, to relate or enjoy them kind of way. I do not tape up thousands and thousands of photos of a person, or walk around lurking in the shadows for them. I confess I do DO that for information. Information doesn’t care or get scared if you stalk it. :-) I digress! Ada Lovelace was one who I felt a deep connection to as soon as I saw her name. I have recently been researching her in greater detail and have found myself immersed in emotion, and excitement. Her contribution to the world is so amazing. Many of the women in the past who contributed a great deal to science and math are forgotten. She is considered the first computer programmer. She had ideas and vision for the future that was astounding for her day especially coming from a “woman”. (Sarcasm intended)

When I find woman that I relate to — I can cling to them very closely.

They help me to discover and remember who I am not. Though I may not be like them in every sense I have enough things that I relate to that help me understand me better. I have a problem relating to women and it has been a painful journey at times to be rejected by my own. I do enjoy the friendship of men much more often because they don’t mess with me…usually. :-) The more I read about Ada the more I feel connected to her, and love her ideas and thoughts. I have discovered some great resources about her. The more I read the more I feel there are some definite Aspie traits going on. I am speculating of course. I read a recent blog post that talked about how Aspie’s tend to share. We like to share our interests with others A LOT. Possibly searching for others to relate to, seeking that connection that we often do not feel with others because our interests are not always the most exciting to the rest of the world. OR we are enthralled in them to the point that nothing else compares.

Still we want to share what we like and what we learned with EVERYONE. 

That is unless we have been made fun, told it was a stupid (strange) topic, or we felt no one was interested based on their reactions. I speak for myself here, but I love sharing things with people and I get SO excited when they share with me. It is an act of love and acceptance for someone to share their thoughts, likings, any part of them basically. I enjoy the differences in people, and I enjoy finding connections with them as well. It makes me kind of giddy. :-) I am sharing about Ada, she is very personal to me and I do not really have a clear answer why. She just feels very close to me — I think it may be the way she saw the world. She looked at science and math in a poetic way. It was tagged “Poetical Science”. Those words made me feel exposed, but they felt like home as well.

In my past I learned to hide any knowledge that I had.

At times I was unable to keep my mouth shut, but mostly I learned to “pretend” I had no knowledge of what people were talking about. I would sit and watch them quietly while the wheels in my head spun. I would listen, fuse their words into my head, and go home and research. I would hit the bookstores, or the library and there I was off on my own personal information tangent. I would write down words people said, if I did not agree with them I would go and seek out books on the subject to figure out what they believed and why I did not agree. The majority of the time I ended up with a changed mind and a lot of knowledge about something I never knew before.

I couldn’t share it though.

I felt like I didn’t understand it well enough, I felt like they would make fun of me or belittle me for what I said. My quiet observations led people to believe that I indeed did not understand. It didn’t help that I have selective mutism and lose my words when anxious, nervous, sensory overloaded, or extremely passionate about something. This type of passion would be if someone were to tell me that my special interest was ignorant, dumb, I didn’t understand it, or I was too emotionally attached to it. That would (will) make me lose my words. I am truly rambling today. I have no real point other than to share one of my special interests — that is not true. I do have a purpose here.

I am doing it because I feel like something was stolen from me.

People have no idea what words or actions can do to people, they can be devastating to someone like me. In the past when I had been making great progress and feeling more self-assured I allowed other people to steal away all that I had achieved with their words. It doesn’t matter whether it was my misinterpreting the words, or the person purposely trying to pull me down. I allowed it and sank into myself and hid away vowing never to come out again. I still did peek out here and there, but with great caution. Today I am facing that fear and I am not allowing it to happen.

I am happy to be me, and I am very happy with how far I have come since the summer.

I am staying here in this place and moving forward. I am shaking off any words from the past that are triggers, and any words that are not encouraging. I am and have been since a child a very open person and I have shared freely. It wasn’t until others ruined that part of me that I stopped and hid myself. I cannot lose that part of me again. It makes me feel whole when I share no matter how scary, or exposing it is for me. I understand that I cannot share everything for my own protection, and for other’s protection as well. I have learned boundaries and I am still learning them. Through reading about Ada I was strengthened and encouraged to stay my course.

I took this excerpt from Ada ,The Enchantress of Numbers:Poetical Science

“There is a great benefit in not copying and pasting because it enables you to come to the next step interpretation, which then leads to integration of both the facts and imagination. Using this process I detected “Seven Cs”, or skills that helped Ada find her way: curiosity, creativity, critical thinking, commitment, collaboration, controversy and finally, care, compassion and copyright.” (My emphasis added)

When I read that everything connected for me.

I told myself to deal with my fears because they appeared for a reason. They are mine and the words and actions of others are only there to expose what I need to work on in myself. (Unless they are abusive and I am not talking about abuse.) They are my triggers and I am no longer afraid of them. The seven C’s represent a lot of who(m) I am, but I am not physically copyrighted…yet. :-)   They represent things that I have been ashamed of and fearful of sharing because so many times when I did it wasn’t a positive experience. People just do not get how their words can be so damaging to another human being. In my past I would rather have a physical blow than to have someone hit me with their violent or damaging words. I don’t think that I am the only one who feels that way. Though being physically abused has its own set of trauma, the bruises heal — the words attached to the blows dig deep. They last as if they were written in stone and it takes time to chisel them off. BUT they can they can be chiseled and they can be rewritten!

So I share more of me to rewrite my past and walk in the present healing.

All about Ada!! (Ada Lovelace Day: 16 October 2012! )

The Computer History Museum

Ada Byron, Countess of Lovelace

About Finding Ada (I love this site, if you have a moment read about their mission. I am very much a proponent of STEM and teach my kids using that method as well as incorporating creativity/arts.)

Ada Lovelace

Poetical Science

OK! If you do not want to read all of that, and I spared you the several other links that I have, here is a quick video. :-)

Ortis Deley – Ada Lovelace

Guess who/what the kids are learning about this week. Hee hee


 

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02/26/12

Meltdown Mornings Turned To Productive Days

This past week everyone was off. All three of the kids were having their moments. Normally Ariel is quite calm, and able to get upset, stomp off to her room for a little quiet reading time, and relax. It normally works for her. It did work for the most part this week, but her temper was flaring. She got very upset at how Joshua spoke to her, and had random and sudden mood swings. Joshua was exhausted all week. I am not sure why. He was tired, cranky, speaking aggressively, not speaking and thinking that he had. He was then getting upset with all of us because we didn’t do what he wanted or answer him. Many times he did not tell us what he wanted. He got frustrated with Daniel and yelled at him on several occasions. He yelled at me. Then would shutdown completely. However, his spurt of anger would lead Daniel into a spurt of anger because Daniel was confused.

It didn’t help that I was confused too.

Joshua will usually go to his room on his own when he is like this. He knows that he needs to calm down. He did not this week, I had to tell him to go to his room on several occasions so he could calm down and we could talk. In the meantime I was trying to stop a complete meltdown from Daniel, or right in the middle of a wrestling match with him. And also trying to save his favorite toys because for some reason he wants to destroy the things he loves when he is angry. Then, thinks we should replace it after all has settled. Anyway… This was all out of the norm to have it happen every single morning this week with Joshua. He is normally a calm little guy, he is loud, authoritative speaking, and “right” all the time, but he is a gentle, sensitive, compassionate, and loving little guy. It was very much out of character. It was for Ariel too, she does correct the boys a lot, but this week it was off the charts and felt dictatorial though she did not mean it that way at all.

Everyone was confused by the others words and actions.

When Daniel is confused about social dynamics it is very hard to get him back to a calm state. He thinks that he has done something wrong, but he does not know what or why. He gets very upset because he feels like he hurt someone, or they hurt him on purpose. So familiar…I think helping him has helped me a great deal to see and understand this in myself. I just want to add how funny I think it is that every time I am learning a lesson about myself it seems to come in many different scenarios, for social confusion this week FB helped give me a nice dose, then it gave resources to clear it up.  I had people in real life confuse me completely with their words, and had to work through that. I had the kids go through it this week everyday. AND I found out that the autism symposium I have gone to for the past couple of years is all devoted to ASD and social vulnerabilities, effective ways to help with social skills, and research, those are a few.

I will be going by myself, and I am feeling pretty good about it. (For now, anxiety will come later.)

How was I able to bounce back and actually accomplish school this week? The grace of God. :-) I tend to shutdown after mornings filled with meltdowns. I allowed myself a little downtime, and then went back to it. No one wanted to do school this week. We were all spent after the mornings, but we had to do school. I decided to do school after lunch instead of the mornings. Some days we didn’t start until 2 pm. We managed to pack full school days into a couple of hours. Why? Because that is how we work. I do this a lot, I have days when I can consume large amounts of information and apply it rapidly. Other days I consume the information and it takes days, weeks, months, even years for me to see a connection, or apply it. It all clicked for me this week and it clicked for the kids. How did I win them over?

A mechanical bird and clocks!

We went over the story The Nightingale and we learned all about clocks. The idea came to me because we are using a book that goes through composers for each era. You read about them and it has a CD with a song from them so you listen to the music as well. (I use much more than the one song.) One composer we learned about was (Franz) Joseph Haydn when I saw the title “The Clock” (shortened) I thought that was it we will learn all about clocks, time, and some math concept. I decided to teach on symmetry because I could use a clock to show symmetry. It worked! Everyone got involved and we had a great time listening to music, writing poems, talking about how clocks work and learning how to tell time. I have been working on telling time with them for a while it finally clicked. They know how to tell time on a digital clock, but it didn’t make sense on an analog. I still have a hard time with that at times, I don’t know why.

Every day after meltdown madness, I reminded them that we were talking about clocks.

I would tell them about a cool new video I found, or a clock craft, or music, or an opera about The Nightingale, or poems that had clocks. Hickory Dickory Dock was able to deter a miscommunication meltdown one day. I felt like I had not really accomplished a lot because the days were shorter.  However, after I wrote down some of the things we did and put up the links on my home school blog I realized that we accomplished a lot. We had a large amount of multisensory learning going on. I tend to forget that we all learn better using multisensory when I take a look at assessments, or typical school schedules. My guys do not thrive in that type of environment. A really great thing was that the kids did get along better after school. They have continued to have their moments, but overall it has been much better after school. I think all of this may be delayed responses to the full social week we had during the week of Valentines Day.

Now that I write all of this I think it may be why I am feeling a little down.

Could be that I am tired and I haven’t even realized it. Lol! I have a mind block to all of the things I do. It never feels like I have done enough or accomplished enough in a day. Why do I have to sleep? I got a lot of things to do! Like come up with another plan to take over the world. Oh, wait. I am the other one “I think so, Brain, but this time *you* put the trousers on the chimp.” Seriously,  I am able to notice all that the kids accomplish, but I tend to think they achieved it all on their own. OH! And guess what? Daniel is completely potty trained! In the past month he has worn big boy undies all day and all night. He has done such a great job and didn’t get discouraged when he had an accident one night. That could have started us back to the beginning of potty training, thankfully it did not. (I am still a booty wiper for all three of my sensory sensitive kiddies though.) So now I will brag a little because they are my rock stars.

Here are some of their awesome accomplishments on our Home School Journal.

I have discovered that we learn very quickly, with more comprehension, and ability to apply things when it is all connected somehow. It’s the way I learn, and it’s my teaching style it works for us. When I separate subjects it doesn’t flow. I guess my guys learn the same way I do. Regular school was never for me and caused me constant meltdowns/shutdowns. If only someone knew this about me back then…at least I know this for my kids.  I failed to mention that none of them wanted to do school until I came up with fun ideas and visuals for the topics. Here are few videos that helped pull us into a school focus.

A Clock Story

The Clock

Poetry in Motion • The Clock of Life

Yea! We had a productive week even though it didn’t feel like it. :-)

P.S. My last FB post really released from my issues. I decided that I do not need to be affected by other people’s issues on social networks. I will use it happily for my purposes and let them happily use it for theirs. Yea! I finally get FB…How old am I? Ha ha ha


 

 

 

 

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02/24/12

Confusion. Great It’s Not Going Anywhere

It is always fun and exciting when you have uncovered a lie that you have convinced yourself of. (I stated that with a sarcastic tone and possibly a British accent because I am speaking in a British accent today in honor of Sherlock Holmes.) Wow! My silliness is really coming out lately. What lie has been unraveled before my eyes? Well…I had tricked myself somehow into believing that my social confusion was going to disappear at some point. Unknown to myself the “mini-me” living inside had kept the secret that it was not going anywhere. Possibly I told mini-me to be quiet. The “main-me” had continued to gather data, and information. I continued to study people and behaviors, thinking I was getting somewhere.

Actually I have gained a lot of understanding.

I do not want to dismiss all of the work I have done and what I have applied. However, I fooled myself into thinking that one day it would finally click. It wasn’t until several encounters this week both online and in real life that made me realize that my social confusion is a part of me. It is going to stay a part of me. I have gotten better in some areas, but still I get confused and have to ask questions. It is another thing that I need to accept about myself so I can move on. It was kind of hard to accept though. I do not know why. I asked my mom last night: “Did you already accept that you are going to be socially confused for the rest of your life?” She looked at me with a “Duh” kind of face and said: “Well, yes.” I was speechless.

Only for a second of course.

What? How did she realize this and come to peace with it? My mom seemed to have everything fall into place for her after she read a couple of books about Aspergers, websites, and several blogs I sent her. All of her missing pieces connected and she accepted herself fully. It finally gave her answers that she had been needing for so many years, and she was settled. I have not had that easy of a transition. I accepted many things, felt at peace and got answers, but it was on the service. I had been pretending to be someone else for so long that I wasn’t even sure what I looked like. I couldn’t decipher who was Angel and who was “Faux Angel”.  In my transition of accepting myself and all of my ways I continue to reveal things that need to be accepted.

Today I accept my social confusion.

What does that mean? It means that I can only be around, and have relationships with people who I can trust. I need people who will support me and understand that this is part of me. I need people who will not get frustrated, annoyed, or angry with me when I do not understand. I need people who will accept that at certain times or in certain social situations my mind is very much like a child. Also, at other times I may completely understand the social dynamic. There is no rhyme or reason. I can know something one day and the next not have a clue. I need people who love and support me even when I am clueless. I also need them to remind me that I am still intelligent and not wrong just because I do not understand what someone means by what they said, or did.

I am not exactly sure why, but I am getting teary eyed as I write this.

I am kind of overwhelmed with my experiences of being ridiculed, or put down because of my social confusion. I am having many flashes in my head where I said the absolute wrong thing and upset people, but didn’t understand why it was wrong. There are times where I said something and made people angry, or they laughed at me and I did not know why. I have other times when they said things to me that I completely misunderstood, and had no idea how to process. (These events still occur today, but I am having a rush of my past play like a movie.) Accepting social confusion for me is washing off those words, and experiences. It is giving me freedom from mistakes I made that I have continually relived beating myself up for hurting another human being. It is giving me freedom from the harsh words spoken to me. Great. Now I am crying completely! BLAH! I don’t like crying.

There are so many factors that play into social confusion.

It is not only being confused socially. The social confusion can be heightened do to many other things. I understand and see this in my children. In many ways the kids are well beyond social understanding than I am. I understand a child’s world though — I understand many dynamics in that social setting because they are still at the age where it’s simple. I think this has been one of my fears about them getting older and me feeling like I will not be able to relate. It isn’t that I will not relate to my children it is that I do not know how to help them when they are teenagers. I didn’t know how to handle it when I was a teenager and I have not learned much to date. I see that many adults continue to operate in that social paradigm, only “sometimes” less dramatic or emotionally enhanced.

It is still all foreign to me.

The good news is that now I have tons of resources to use, or lead them to so I know that they will be fine. We will figure it out and they can giggle and poke fun at their clueless mom. Not in a mean way, you know. It’s like when my mom is clueless and I call her on it, we laugh. She does the same thing to me — it’s funny. I got a little emotional in the middle of this so I may have run off and gotten distracted. The purpose of this post was for me to solidify my acceptance of my social confusion. Also to share with others in case they had not accepted it as well. It is hard to remember that autistic adults go through the same social confusion as kids. It is very hard to remember when the adult is able to speak well, work, go to school, have a social life, be a parent, contribute to the community, etc… It is very easy to forget the struggles, or believe we do not have them. Most of the time we have just learned how to hide them better.

It takes a lot sometimes to go out and be social knowing full well you are going to still be confused.

Thanks to Lisa at Alienhippy she posted several links and images that helped me a great deal. They are on her other blog Missing Jigsaws & Excess Lego. I am going to share some of the images on here they are from Autism Discussion Page, which is an excellent and very helpful resource page. Here are links she shared as well that I thought were very helpful. Sorry the images got mixed up and are not in order. I do not have time to fix it now. Maybe later. :-)

FRAGILE WORLD ON THE SPECTRUM

Asperger Syndrome or High-Functioning Autism?

OH! I just read this and thought it was good. It has nothing to do with autism, but it could help the autistic mind. :-) Mine anyway. Sharing. The Mindful Self-Express (added very quickly now I must go)


 

 

 

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02/22/12

Facebook All Up In My Twitter

I chose that title because I think it is hilarious! Bwaaa Haaa I am totally on a Facebook rant I have no real purpose other than speaking randomly-chaotic-silly spews of pandemonium. Ok, the truth? I have been laughing at that saying all day and wanted to use it as a title and I wanted to use the word pandemonium because I have been fixated on words today. They make me smile. I have accepted that I am in yet another information consuming loop. This causes me to get all frenzied and I have learned how it can be fun instead of mind halting. I have also learned that if I do not let my silliness out all of the information will cause me to spiral into a serious mode and I will feel the need to change the world TODAY AT ALL COST! Welcome to one of my information overloaded mind nonsensical posts.

I have voiced my issues with Facebook before…my personal account not my MindRetrofit account.

I like my Mind account it is nice and quiet. There are no people on there making me socially confused, or giving me anxiety. I do not have to see family members play pretend nice. I do not have to filter through “reading” between the lines. It is simple, clear, and not a lot of hooey. I like my Twitter account because of that as well. I follow people who are clear, funny, and give me great things to read. I do not do much on my Twitter account other than post my recent blog posts or poems. I can’t really — I do not do that well at typing on the fly. I end up with horrible grammatical errors that send me into a panic. I also end up saying things that I either later regret or someone misunderstands.

At first I thought that this social networking would be a good thing for me. 

Overall it is not bad as long as I limit my interactions with people who confuse me. I am a little freaky about how many friends I have too. It really only has to do with numbers, not people. Hard to explain. On my personal account I started to get panicky when I exceeded 50 friends. People from my past started popping up and wanting to be friends. Some of them I ignored others I was happy to see. Now that I am at 111 I do not want any more friends it’s nothing personal I just want to keep 111. If I could get a round of people to friend me and get to 122 that may work. BUT that would be it 122 is my limit on my personal account. (Strange, I know.) I actually did not want to go past 99, but I was forced to because of family. Again some of them I do not mind, others um…no comment. I do have them hidden, but I know that they are still there. I hate the feeling of being obligated to keep someone as a “friend” who is not. I really hate it when I know for a fact that they do not care in the slightest about me or my family. Unless of course I am “failing”.

I sometimes wish I did not set up a personal account. 

At times I go through frantic posting phases with all of the new information that I find. Or posts that I read that I think are informative and awesome. I pretty much stopped posting photos now because no one cares. I get hit with the feeling like people think I am stupid, or something. It mainly happens when I have posted things that are my special interest about science or math (numbers) only to see other people post it months later as a new revelation. I find it ironic that they would miss my post when they were on FB at the same time. It’s possible, but after it happening several times it makes me wonder. The other thing is they do nothing at all, they say nothing. And I get all out of sorts because I cannot understand why no one would comment on something so amazingly, awesomely, way cooler than anything else going on in the world. Or at least click the “like” button.

Hello!

I do not know why I automatically think they must me ignoring me, or think that I must not understand what I am posting. I don’t know what my problem is. It is all social confusion, I guess. It does not help my “Angel is invisible and does not really exist” feelings; I will say. I cannot bring myself to defriend anyone though. It would hurt me too much to defriend them. (insert over-the-top eye roll here) I think my biggest problem is that I do not understand what people mean by their words. Let me make it clear this is a limited number of people that I am referring to, but it only takes one to send me into a mind spiral of confusion. I have gotten a lot better with this though it still can happen. The bounce back for my brain is much quicker now. It seems that I have a group of “friends” who use FB as a Passive/Aggressive Wonderland. On my dad’s side of the family there are hidden messages in their speech. I have always been confused by it and only figured out this was happening a few years ago without true comprehension…until this past year. However, the damage has been done. I ended up with friends and significant others who did the same thing to me. They would all get frustrated and upset at me when I didn’t do the “hidden” thing that I was supposed to do.

It is all so confusing.

It happened in other social dynamics too. I could not tell their tone, or what their non-verbal cues were so I did not do what was expected of me. I did not say what I was supposed to say. I find a lot of that stuff going on FB with certain personality types. I understand that now, some people I am perfectly fine it is the handful who throw me and get me all confused. I have learned my lesson and stay off of there when I am mentally, or emotionally exhausted. I know better than to read certain people’s posts or I just hide them when I’ve had enough. I didn’t realize why I disliked FB so much until today. It is not FB really it is the fakeness that comes out on there. It is the high school-ish feelings of being left out, ignored, not part of the “in” crowd. I have never been in the “in” crowd. I am all over the place. I am my own crowd with all my imaginations and whatnot’s. :-)

I like all kinds of people who are real and enjoy speaking their minds without judgment.

I get bent out of shape when I read comments that are judgmental, or condemning of other beliefs and ideas. It can send me into a frenzy. I recall one instance that happened with my cousin. (However, not limited to one that would be another reason for my lack of commenting or posting on FB.)They posted something about the U.S. being a certain type of nation — I pulled up a study with graph charts and everything and proved that they were incorrect. They deleted my comment. I emailed and asked why my comment had been deleted, they said that it “Deterred from the message that they were trying to make”. The message was unequivocally WRONG!

It did not matter to them at all.

What they believed, which is dividing and casts people of different beliefs into a “we vs. them” category, was more important than trying to bridge the divide. I was not rude about it I shared with a “Why don’t you think about this?” kind of attitude. This is another reason why I have to stay off at times. When people put up their views as absolute, but will not even consider a discussion. They will not consider in the least bit that there are other people who may be offended or even hurt by their posts. It makes me want to give a grand history lesson about our country, or send them the cycles of U.S. History  (The cycles is a theory, but it is very interesting and it helped me to see some of my black-and-white thinking.) so they can study for themselves where they fall into. Sigh…Not to condemn or judge, but in hopes that their eyes could be opened to seeing people instead of labels. I would like to send them a lot of different things. I will not share them all here today in hopes of not getting sidetracked.

It hurts too badly sometimes to see judgmental and harsh posts of any kind.

I know I can be too sensitive that is why I have taken to controlling my FB personal account when in “hypersensitive” mode. It drives me batty to see those things — it really sends me when I know information about their own lives that could be judged by the same harsh terms, but they would be deeply hurt if someone were to do so. I do not think it is right to judge them either, but I am making a point here. Despite all of that I still find some great pleasures on there as well. I “like” quite a few pages. I have my world of musicians, poetry pages, philosophy, sciences, various blogs, and other aspie’s that I thoroughly enjoy seeing on my facebook page. I like how I can go on there and see new music, see how my aspie’s friends are being silly, or autism parents sharing what their day is like with their child(ren) on the spectrum. It helps me to see that there are others who are experiencing the same things I am in a day. I like going to my Twitter account and reading great links, and finding new resources. My mind can get so consumed with things and I forget that I am not alone in this. Facebook and Twitter have helped me feel connected and for that I am thankful. Google+ well that is a little secret right now….

It makes me feel a bit better knowing that others are on Facebook all up in their Twitter too.

My recent FB interactions have stirred me to rewatch certain documentaries.

Purple State of Mind: Official Film Trailer

God In America

I cannot remember if I have shared about Generation Theory before I was fixated on it a couple of years ago and I constantly see connections to it. I find it very captivating indeed.

Life Course Associates (Strauss-Howe website theorists responsible for Generation Theory)

Generational Theories by Strauss and Howe


 

 

 

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02/19/12

The Play And My Role

Friday I was completely exhausted, mentally and physically. My body retaliated all week (still is) and I finally gave into some medication. I am always apprehensive because I never know what will work, and my body responds in strange ways to medicine. I caved and tried some extra strength Bayer, it has been working at least I have been able to get some sleep. I was very excited about going to see the play Into the Woods with my mom and sisters. I was unable to sit still so I went outside with my iPod shuffle, it was rainy and a little cold, but it was SO cool! (They were coming to pick me up.) I watched the small rain midst shower down through the light of my lamp post in my yard. (I really like the lamp post so does Daniel.) The lines of water showering down, in the light, against the black sky, to music was a very happy moment for me.

I tried to control myself from dancing because of my shoulder, but I could not.

It helped me to be calm while I waited. My interactions with my sisters can be very negative or very positive. When my mom is in the midst of the dynamic it is all very strange. I am not sure how to explain it. Since I am the oldest by birth, but not the oldest by same mother/father sibling there is a weird kind of atmosphere that takes place with my eldest of the two sisters. The same thing happens with my eldest of the three sisters with my dad and step mom. With these particular sisters there is an odd dynamic because I took care of them a large portion of their young lives. I was with them all the time, watched them, took care of the house, and had the mom role. My mom worked a lot of hours during their lives and was unable to spend a great deal of time with them until about their teenage years. Long(er) story.

In their eyes my role was confusing because I was sister/mom.

To be honest it was confusing for all of us. I managed my mom’s emotions as much as possible and was the go between with them for a long time, until I left. Still any time in the past or even now I feel the need to explain my mom’s behaviors because my sisters get upset or confused. The funny thing is that my mom does the same thing for me with them when I am not around. We understand each other even if we do not understand how it feels, or we do not feel the same way. We know how to explain each other’s behavior to others. Our ability to do this with true understanding and acceptance has only happened in recent months. My mom and I may have been able to explain each other, but not because we had a comprehension of why. We understood from patterns we observed in each other that certain things would cause meltdown/shutdown. We were trying to control our emotions as well as everyone else.

Our acceptance of each other is new.

AS(pergers) has explained a lot for us and has cleared up a lot of past hurts between us. My sisters forget, kind of… um, still unwilling to accept that my mom and I are on the spectrum. Both mom and I are going in for a diagnosis because if it is not AS what is it? All signs point to AS, but there could be a chance of something else and we need to know. I know, I know I am SO sidetracked lately. I have a lot to process. They arrived and my sister whose birthday it was started to get out of the front seat to let me sit. I thought that was strange, I told her I would sit in the back. She asked: “Are you sure?” How silly! I said: “Of, course, silly!” I sat in the back with my sister who loves skeletons and vampires, and anything dark and creepy. (Yes, I was blamed once again that night for her love of “creepy” things.)

We headed out and were completely silly.

My mom was playing a Frank Sinatra CD. My sister who is a complete Hip Hop/Reggae fanatic also LOVES Frank Sinatra. We are all musically eclectic. (Thanks mom :-) ) I started laughing at some of the lyrics. We were just plain silly. I couldn’t stop snorting – that made everyone laugh. I have a contagious laugh I have been told on several occasions. The playhouse was crowded and small. We did not know what to expect because it is never easy to tell how things will turn out around here. We got into our crammed seats, and the buzz of talking was a lot. The smell of people was driving me crazy. It was all too close, I was glad that I sat between my two sisters because otherwise I might not have made it so close to strangers who smell like perfume or who breathe on me!

The whole play was awesome!

The actors were great performers. I was very impressed with how professional and talented they were. I absolutely loved the play. If you have not heard of it, basically it takes several of Grimm Brothers fairy tales and mixes them all up and twists them into one storyline. I love fairy tales, myths, Aesop’s fables all of that I love it! So does “creepy” loving sister. :-) My other sister was getting very annoyed with all the singing and stuff and started getting very negative. In the past I would have gotten very upset, but instead I ignored her. I was having too much fun. The clapping didn’t even bother me sometimes I have to cover my ears when people clap. The acoustics was just right though so the voices sounded fabulous and it all felt muffled in a good way. It wasn’t as daggering into my ears. At the end I clapped and clapped and yelled:”YEA!” I was bouncing in my seat. My sisters just laughed at me, this behavior is not new. It is new for me to realize that I am doing it though.

It has made a difference to know why people are looking at me funny.

In their world rightfully so, I am a grown woman who seems to be acting like a child. My negative Nelly sister was annoyed with the song Into the Woods that I could not resist singing during the intermission and changing the lyrics. It helped her to laugh and start making up her own lyrics. The video I shared has the ending the song as well. The message made me tear up, but I am not sure why it moved me so much. The “Children will listen” thing really got me. By the time it was over my mom hightailed it out of there. She ran over several elderly folks and left us in a dash. My sister’s thought she went to the restroom because she always has to go pee. Sorry she does it is of high frustration while taking her anywhere. :-)   We stood by the restroom waiting, but then she came zooming up to us and said: “Come on! I was already outside.”

Here is where I realized my role with clarity.

My sister got angry. She is an emotional person — everything is said out of pure emotion. She started saying some negative things, and then said: ‘I am never going anywhere with any of you ever again!” Kind of loud. She said: “I hate this, she always acts like this. She always gets all mad and then storms out of wherever we are.” (Referring to my mom) I told her that I didn’t think mom was angry at all. I explained that she HAD to get out of there. It was crowded, loud, confining, and mom freaks out if she feels trapped. It was surprising she made it through the play because she felt trapped the whole time. My mom was exhausted, it was 11pm she had been up since 2:30 am, she worked a full day unloading a truck (she is 56), and she is normally in bed no later than 8 pm. My sister was frustrated because she had to get up at 4 am and make two wedding cakes the next day.

I explained that mom was not doing anything toward us.

I tried to explain to her why mom was acting the way she was. My sister was not accepting it I started singing the song “Into the Woods” with lyrics about her pissy attitude. (Sorry that is the best word for it.) I then cuddled up on her shoulder because we ALL hate that! NO TOUCHY! All four of us do not like being touched so what better way to torture her. Since I was inflicting the torture I was alright with the touching. She was able to snap out of it because who can stay angry while a grown woman dressed like Amelia Earhart in her amazing black knee-high boots and black scarf singing silly songs; skipping down the middle of the road; is proclaiming her love for you? Come on! In the midst of all of this my mom who was speed racing to the car and completely oblivious to my raging sister said: “Man, I just had to get out of that place. I felt like I was trapped!” I looked at my sister with a “See!” look.

On the way home we continued our silly songs.

I shared with them the reasons for my several occasions of random outburst of laughter while everyone else was completely silent. It was made clear from the beginning that if we felt the need to laugh by all means do it, and I did! Like the time they went to a new scene, all was dark, the lights came on and there was a lone stump of wood. I started laughing loudly and covered my mouth. The thought that popped through my head was “Got wood?” Why? I don’t know. Before the show started, I was digging around in my purse for gum and found a fork instead. I pulled out my fork and asked: “Do you want a fork?” This is why I don’t go out much. Ha ha ha I meant both of them literally, but I understood from past experience that other people thought of it differently. That was the reason I laughed so hard about the wood I was laughing at seeing my naïvety.

I don’t remember putting a fork in my purse.

I do put strange things in there… often. I realized how much I am the go between with my mom and sisters — I am mostly the comic relief. That is my role a lot of the times. Not in this situation, but in many others I can see where I pushed down any of my feelings, stopped my words so I could bring laughter and peace to a situation. I am very thankful for all of these experiences that have come about this week. It has helped me a great deal in understanding my unhealthy patterns, seeing my new healthy patterns, and gaining a little freedom from anxieties that used to debilitate me. See it, learn from it, and move on. I tell you what though I will always believe in fairy tales. And maybe that night I encountered Zennyo Ryūō.

I was very giddy and found that the song playing was quite fitting.

 Young At Heart — Frank Sinatra

Fairy tales can come true, it can happen to you
If you’re young at heart.
For it’s hard, you will find, to be narrow of mind
If you’re young at heart.


 

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02/15/12

Lovely Barn Wedding — Missed It

Alright yesterday I was sickly, I cried, I felt horrible for a while, and was drained. It happened later closer to noon. I spend most of the day in shutdown mode, so my flying high social movie event caused me to crash. Good news. At around 4pm I was able to sob it all out in the shower, I made dinner, and I told myself that I was going to a barn wedding and that was awesome. I was able to bounce back. I will add that it was a little stressful with the kids having their own anxiety issues about going. It was all new, and they didn’t know what to expect. I dwindled my day away by watching the History channel with the kids. We did learn things – no one was in any frame of mind for school so we took a sick day.

I was very slow going and had to rush to get myself ready.

I tend to do that a lot I think of other things to do besides getting ready to go somewhere. The next thing I know I am running late because I just HAD to organize my make-up at that moment. It HAD to be done right then and there before anything else could happen. I don’t even have a lot of make-up, but I managed to waste time to make me a little later. I chose a dress that has cool patterns on it that I like so if I got annoyed or bored with people, then I could stare at them. I also wore my pointy toe boots that I do not wear that often because they felt fun. I called mom and said that we would meet her at her house and head out since we were going in kind of the back woods.

Mom and I thought the wedding was at 6:30pm.

We got there with about ten minutes to spare. We walked in and thought that it had not started yet. A lady from our old church came up and talked to me, she is a very sweet person. She actually does not go to that old church anymore either. After a few minutes of talking, it was revealed that the ceremony was at 6pm. Aaaaahhhhh! What????? Oh, goodness. Mom and I sat looking at each other — we both shutdown. We both felt horrible. She started to tear up. I took over, and told her that there was nothing we could do and we needed to find our friend. I knew that would calm mom down. If she talked to our friend she could snap out of it even though the guilt and bad feelings would still be there. (It was our friend’s daughter getting married.) I am friends with the groom’s mom as well.

My guilt took away all fears, and anxieties.

I had to find them. I went straight to the bride’s mom and hugged her and then confessed. Of course she was very nice, but then was very concerned about mom. She has been friends with my mom for about 14 years. She knows what my mom will do to herself for making such a mistake. The woman is very much an NT, but she has four daughters with learning disabilities, sensory integration, and at one time her youngest was considered on the spectrum, but she refused to get a formal diagnosis and considers her completely healed. I am not sure that she was on the spectrum, there are other factors there. I am not going into it though. The woman is accepting of my mother’s AS and that is all I care about. I then went to the groom’s mom and confessed she was very nice and just happy that we made it.

Sigh of relief.

They both told me to go say: “Hi” to the bride and groom. I do not know them as well. I was a little anxious because I did not know what to say. My mind was blank, BUT I saw the cake it had an OWL on it. I squealed. I looked at them, congratulated them, and said something I cannot even remember, and then I said: “You have an owl on your cake! Owls are awesome!” After that I lost all of my words, and I was standing with Daniel and looking silly. There was an awkward silence, with them smiling at me and Daniel. I could finally hear the music and I got excited and blurted out: “Is this Explosions?” They looked at me funny. I blurted out: “Is this Explosions in the Sky?” They just continued to look at me funny. I scanned the bridesmaids looking for someone to confirm what I was hearing. The last one had a mouth full, but gave me a thumps up. I said: “Yes!”

At that point I could not recover and basically walked away to get a close up of the cake.

I had a feeling that I was going to see an owl. Ha ha I really did. I was hoping it was real though. I later took the kids up to see the cake because Ariel and Joshua had not seen it. We went up and I let them have a little punch. While we were walking down the stairs I heard another song that I love. It was Regina Spektor singing “Us”. I said: “Oh, it’s Regina Oh! It’s Us!” I was a little loud — I didn’t care and I was singing. It wasn’t that I didn’t care it was that I didn’t really notice until a guy turned around and looked at me. He smiled so I guess it was ok. The music threw me because the people that I am talking about were not listening to any music except Christian music the last time I was around them. I was not expecting it. I also was NOT expecting to hear Explosions, or Regina who I love both of which I have happy connections to. Bonus for me and it helped me be calm.

The barn was not a real barn.

I was hoping for animals and hay and stuff. It was on a nice lake and had fabulous huge trees that I would imagine great owls to be living in. I got some pictures. There were deer heads on the wall I got a picture of that. I was very social so I will probably crash at some point. I did enjoy myself. Here is the big accomplishment. I was not full of anxiety before, during or after. I did act spazzy, but I fooled everyone. I mean that I did not have the fearful anxiety. I had my normal dose, but I was not afraid for the sake of being afraid. I did not panic. I did not hyperventilate beforehand. I did not freak out when I found out that we missed the wedding ceremony.

This is huge because I did not know who to expect to be there.

I know these people from the church that was a negative experience. Most of them have left that church, but I knew that there would be a few who still attend that church. I did not know who or how many. There was one of the moms of an autistic boy there. The boy is now 18 I think. He is considered high functioning, but is unable to live on his own. When I met the woman she told me that she would not allow her son to hand flap, stim, fidget, or anything like that. As I watched her son he was very calm, sat still the whole time in his chair. She was sitting right next to him and I did not see her smile once. She looked at me several times which made me notice that I was finger twirling and swaying to the music.

I did not stop.

I also noticed her looking at Daniel as he swayed back and forth to the music, jumped up and down, I jumped with him. She glared at him as he ran back and forth looking at the lights and ceiling fans. She would not look me in the face. She kept her stone face as she watched Ariel, Joshua, Daniel and me twirl, dance, jump, rock, hand flap, and stare. (We were not being obnoxious, it was our subtle stims. Those who are familiar with autism would notice these things other people tend to not notice “most of the time” everyone has their own fidget or whatever. It was a wedding so no one really noticed at all.) The only reason I noticed her was because she was at the next table sitting with her family. At church she would sit next to me sometimes and point out things that Daniel was doing and would tell me that she did not allow her son to those things, but “That is just me” she would say. It always confused me.

We all stood there doing our thing with big smiles.

And guess what? Other people smiled too. I didn’t care what anyone thought, and she was the only one who seemed to be offended. We had fun, and went to the store afterwards for a treat because we couldn’t eat the wedding cake. The kids and I were in the front of the store and a woman from that same church we used to go to saw me. She came right up and hugged me and wished me a Happy Valentine’s Day. I wasn’t shaken at all. I was able to hug back and not get freaked out. All this hugging is probably going to make me itchy today.  :-) It may all hit me later. That was a huge moment too though because she was one of them that said to me that Daniel was not the way God intended him to be and she was praying for the autism to go away.

It was good for me to see her.

I am working through anger about things like that and when I saw her I was not angry at all. I understood that she does not have a clear understanding of autism. And I know that she will not because she is in a system that will not allow it. It does not allow her to. She cannot leave that system because it is her group and if she goes against the group she will be rejected. She will be alone. She cannot handle that rejection. It has nothing to do with me or Daniel. It is her issue and her issue does not have to be mine. I am free — my kids are free and happy. As far as I am concerned she needs my compassion, I would like for her to understand our world. I would like for her to understand how hurtful it is for people to say things like that, but she won’t. I cannot control that I can control the self-confidence, the self-acceptance, and general acceptance of others in my life. I can raise my kids to be accepting of others.

That is all I can do, I wish I could change people’s minds.

The only way anything will change is through being myself no matter how people treat me or look at me, and to teach my kids the same thing. Either they accept it or they don’t. It is very hard, and I am sure I will have a good rant again about how people piss me off! I did understand it for a moment though. Possibly it had something to do with two posts I read recently that really got me thinking. Letting Go Of Pain From The Past With Compassion and When Another Person Makes You Suffer. They were very timely and I am feeling very good about working through these anger issues of mine. I am finding that I am not raging angry at all, I am changing. My anger is being rightfully felt, processed, and turned into compassion. The first step is to accept that it is ok to be angry. Anger is stirred for a reason, but I do not need to use my anger to attack or harm others.

That is not me anyway.

Side Note: Here is how my mom and I are different. After I told the moms that we missed the wedding ceremony I went and told my mom that I told them. She panicked, and said: “Why did you do you that? I was going to tell her on another day.” I told her I couldn’t handle the guilt, and I had to know that they were ok. I couldn’t live with myself if I didn’t tell them. My mom felt like it was worse to tell them on the wedding day. It turned out my way was better because mom was able to feel relief and comfort from our friend’s acceptance. My mom laughed at me though, she knew full well that I HAD to confess. I always do. :-)

P.S. Those who received my panicked email about accidentally publishing my chaotic ramblings from last night in a completely unedited version using the WordPress App for the iPad that is a horrible grammar checker, and I cannot use a touch pad very well…deep breath. Sorry for all the typos and I am still not recovered so this post may be “all wacky tobaccy” too. HA! Thank you for not reading and deleting immediately. :-) (Yes, I just created very long run-on sentence.)

Now for some Photos! Yee-Haw love me some barn weddings! (They did not turn out that great, but I got boot and shoe shots.)

 


 

 


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02/8/12

Words For The Day Felicific And Grief?

Felicific [ˌfiːlɪˈsɪfɪk] adj making or tending to make happy

I am quite chipper today. I had a moment of realization about my emotions. They are not sneaking up on me like they used to. I am working through some anger issues — I have a lot to be angry about. I have years of bottled up anger I was not even aware of because of the other emotions that had kept me tied up. Many of my loops were actually caused by me trying not to be angry. In order for me to deal with my upsets I first had to deal with the hurts. Let me be more specific — I had to understand how terribly hurt I was. Once that was cleared out (Not that I am completely recovered I am just in a far better place.) I could see with clarity what some of the true issues were.

Unfortunately, it has opened years and years of hurt.

The hurt has now turned to anger. I am not really sure how to deal with it all, but I am doing much better with managing my emotions. I had a moment of tears yesterday, but they did not last long they were not as painful as they have been in the past. I was able to bounce back quickly. Granted I have been in a slight shutdown, but it has been a good processing shutdown. I am feeling pain, but it is different. I am not sure how to explain it. I have noticed as well that my anger emotions have been popping up. In the past if I got angry it was usually an outburst, like my last meltdown or it was a complete shutdown to hide anything I was feeling. Then, I would later explode through a meltdown of some sort. (I am not saying that I will never do that again, I may.)

I have not been suppressing them the last few days.

I felt the anger, I told myself that it did not have to ruin my day, and I let it go. This is huge for me. I have never been able to do that. However, I still feel the tinge of it in my heart because it was not completely resolved. I am not looping though. I am still feeling a mix of emotions from last night. I am currently filling out the necessary paperwork to have Daniel reevaluated. He will not get in until May, but I have to get everything all put together and in as soon as possible. It brought back all of the emotions I felt during the time that we started evaluations. I looked at the dates, and I was so frustrated. I was telling people that something was not right from the beginning. I knew that he needed help, but no one seemed to believe me.

I voiced my concerns to the doctor before he was even two years old.

I had forgotten that when he had his eating clinic evaluation they commented, “possible autism” and suggested occupational therapy. It brought a rush of emotions that were mixed with failure and anger. I felt like I had failed my child, I felt like I had not fought hard enough during those first few years, I felt like I had been abandoned and my voice didn’t matter by family, and authorities. BUT it was right there in front of us all. It also brings a mix of emotions for me with people who are resolved with all of that. I was not able to resolve anything including my emotions toward the people who I felt did not listen to me. It brings a baggage of emotions. It fuels rage with certain people. It reminds me of people saying awful things about why Daniel had autism. It flooded me with the fears, the doubts, the hurt, the frustrations, it brought everything back. I felt like I was drowning alone trying to help my son without a voice. The louder I screamed the more they drowned me out, even after we found out he was autistic.

It revealed how much I have not dealt with.

I am going to have to process all of that. I do not know what it will look like. The positive is that it has not caused me to go into complete shutdown. I am processing in a healthy way, with my new coping mechanisms. It is also making me very happy to feel this freedom. I have not allowed myself to be angry for a very long time. Part of the reason is that I was confused as to how I was supposed to deal with anger. I had a lifetime of hiding my anger and other emotions until they were unbearable and would burst out in some way. I did not allow myself because of how people responded. After working through some other emotions these several months, I accepted that I am allowed to be angry, feel anger, and express it in a constructive way.

I could not let the questions flooding my mind go.

The process that I have been going through felt too familiarnot because I have gone through it, but because I had read about it. This morning I recalled the process that I have been going through — I wrote a poem about it months ago. I hadn’t made the connection that I have been in a grieving process completely. I could very well have said in past posts that I was grieving I do not remember, but it did not make a true connection until today. I may have felt like I did grieve things and processed them, but I truly had not because I didn’t understand what that meant. I thought dealing with things meant you stopped looping about it until it came back around again. If/when it came back around I would stim, meltdown/shutdown until the loops stopped. They always came back sometimes not as intense sometimes they have been more intense, but I convinced myself that I was dealing with them.

I was dealing with them, I was not processing them.

I did process certain things I must say, but I also only dealt with things as well. I did not understand what grief was for a long time. Grief is normally connected to the extreme of loss, a loved one or a cherished pet passes away. It is not limited to that, and I would guess that Aspie’s tend to have more traumatic experiences when losing something important to them. I say that not based on the comparisons of trauma, but because we do not really understand what we are feeling at times. It could cause more trauma not understanding what or why we are feeling something. I would also guess that we grieve a lot differently than others at times. (Guessing based on myself, movies, and others I have read about.)

I believe everyone does actually, and I think it is horrible how there is a blanket of expectation how one should grieve.

Everyone needs their own way to process and deal with emotions. I express all of my emotions differently than other people. I had always assumed that grieving only went with major loss — I didn’t realize that many other things can fall under the grieving process. I have never gone through the process fully. I am at the anger stage with some things. I will add here as well that there is no formula to the grieving process the mind will process according to how it needs to. If you do not allow yourself to go through the process the emotions still manifest only through different means. In my opinion, what I have witnessed some people do instead of truly grieving is take the pain on as an identity and it becomes their new purpose in life. They now become advocates of whatever they are grieving. This can be a good thing if the person is grieving properly, it can be a bad thing if the person is hiding behind the identity. They begin to live vicariously through their made up persona of the “healed” self when they are not healed at all.

They feel they are healed because they are living on the “rush” of helping others.

These people can never be alone, they are usually evasive about feelings, and do not express any negative emotions. If they do, then the façade will crumble so they have to keep up appearances not just for others, but mostly for themselves. Maybe I did that who knows, (probably) but I am not now and it is making me feel very happy to look in the mirror and deal with myself. All of this has been and is painful, but it is also the feeling of felicific. (I just like that word and wanted to use it again.) I think it is important for people to understand what grief is and that it can be turned into a positive. Creativity can be at an all time high during a grieving process, and many great insights can spawn out of it. It is scary, it can be a long process, it can be overwhelming, and hurt like mad! Personally, after working through several things I have found so much peace, and positive things come out after the storm.

I am hanging on to that as I work through anger.

I found this to be very helpful Coping with Grief and Loss Understanding the Grieving Process. What truly helped me the most was this section:

What is grief?

Grief is a natural response to loss. It’s the emotional suffering you feel when something or someone you love is taken away. You may associate grief with the death of a loved one – and this type of loss does often cause the most intense grief. But any loss can cause grief, including:

  • A relationship breakup
  • Loss of health
  • Losing a job
  • Loss of financial stability
  • A miscarriage
  • Death of a pet
  • Loss of a cherished dream
  • A loved one’s serious illness
  • Loss of a friendship
  • Loss of safety after a trauma

The more significant the loss, the more intense the grief. However, even subtle losses can lead to grief. For example, you might experience grief after moving away from home, graduating from college, changing jobs, selling your family home, or retiring from a career you loved.

I went through seven of those losses from years 2000 through 2002 a few of them more than once in that time span.

I never processed any of it. I completely shutdown. My sense of loss was enhanced by confusion — the confusion of rejection from multiple people who claimed to love me. I had all of that before I ever moved with David to another state, a state that I really did not want to move to. I then was hit with another round of losses that I never dealt with, to move here and add another round on top of those. I think part of the reason was that I had no idea what I was feeling, and I did not know how to process anything. I am not exactly sure how the sense of loss affects autistics, but I do know that we feel it, and it could be a lot more intense than what others feel. Yesterday Ariel was irate — she lost her temper and then got incredibly concerned. She had found a caterpillar in the backyard, she made a dirt hole for him, and sat on a blanket feeding him grass and leaves.

The boys accidentally mauled over it with the pretend lawnmower.

She was devastated, and had to go to her room for a while alone. She was not able to get over it so we explained that maybe he was ok, he could have made it and dug a hole or something. She calmed with that, but David did explain to her that the birds in the backyard may eat him. She seemed fine with nature running its course it was the unjust death that brought such devastating feelings of loss. She is fine with the bird eating it because that is what is supposed to happen, but to kill the caterpillar on her watch was too much to bear. It may seem odd, but in our world it makes perfect sense. She seems to have grieved her caterpillar. The moral of the story? Sometimes explaining things logically can help us grieve properly. Suggesting ways of dealing with loss instead of telling us how to process it could be very beneficial.

Understanding that we may go through a serious shutdown/meltdown at the loss of an object/people we love.

I was depressed for years at the loss of my parent’s relationship, and didn’t even know it. I went into a complete shutdown when my parents got divorced because they did not explain it to me in a way I could understand. It brought about more confusion by them saying that they still loved each other, but could not live together. It also was not the full truth, I didn’t find out the full truth until a few months ago. It cleared up so much and made it possible for me to move on. It’s been something like 35 years that I have been holding on to confusion about it, as well as feeling guilt for things I never should have. I was depressed for days one time when my computer shutdown. When I gave away my stuffed animals from childhood I cried. I didn’t let anyone know though. (I was 30 something) Anytime, I give books away I go through a grieving process. I am attached to them all. I have memories, people, music, letters, numbers, colors all connected to them.

I am intertwined with things that I love.

If they go I feel a loss that I have to be allowed to process without being criticized or ridiculed. When it came to those things I didn’t understand what I was doing, I just thought that I was upset or depressed. I see now that I had to process the loss, and file the memories. It can be alright as long as the process is not hindered or made more confusing by people trying to force their ways of coping onto me. There is a movie that I liked very much, I cannot recall if I have shared it on here. It is titled Snowcake (Warning: There is a collision scene with a truck and car that freaked me out when I saw it the first time. It still startles me.) Sigourney Weaver plays an autistic mother, who loses her daughter, and does not display the “normal” ways of grieving. I saw it a couple of years ago, and it touched me greatly as a film. It was painful to watch, but good for me as well. Here is the synopsis. I am currently at the stage of anger with things that initially were causing me anger when I first started this blog in 2009. I am ready to face them and bring some more peace to my mind.

And also learn better coping mechanisms for anger.


 

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